Anticipating Parenting

March 30, 2011 by in Parenting, SPD with 10 Comments

Parenting; the word conjures up many thoughts and ideas.   

I myself had my own thoughts and ideas before I became a parent and they changed ever so drastically after I had my son. Your ideas on parenting usually change after you have a child, but they never change quite as much as they do when you have a special needs child! My son is now 3 and was diagnosed with Sensory Processing Disorder at 18 months. I have my usual challenges like most moms, but on top of the “typical” situations I find myself dealing with, there are just as many or more “atypical” situations.

I anticipated the usual complications with being a new mom; sleepless nights, lots of diapers, spit up, etc. While I did have plenty of those experiences I also found myself struck with so many other experiences that I had no idea how to deal with.  Everyday occurrences that most people take for granted are very difficult to accomplish at our house.

Things like hair brushing, teeth brushing, nail trimming, eating, bathing, visits to the bathroom all come with their own set of struggles that we have to work through on a daily basis.

I never thought I would have to wait until my son fell asleep for me to trim his fingernails or cut his hair.
I never thought I’d be up at 9 at night until my son fell asleep so I could clean his teeth with a dental tool because he can’t stand the sensation of a toothbrush in his mouth.
I never thought I’d have to puree my son’s food to almost a soupy consistency just so he will eat. 
I never thought he wouldn’t be potty trained at 3 years of age.
I never thought I wouldn’t be able to take him to the park because the swings and slides would cause him to go into a complete state of fear and worry.
I never thought he would hate toys that made any type of noise because the sound would drive him batty!

In the beginning, I was completely thunderstruck and overwhelmed with no idea of how to handle the situation, but now it’s such a part of my life that I wouldn’t know what to do without it!  Now, I just try new ideas to help him manage his SPD and keep a sense of humor along the way!

I mean, it must seem unusual to see me poking around in my son’s mouth with a dental tool and a small light during the middle of the night trying to clean his teeth!  It must be hilarious, that as I am trying to potty train my son I let him run around without a diaper in my backyard for him to do his business in hopes that he’ll one day feel comfortable to sit on a toilet. (This has only worked once! He did go number 2 under our patio table only to announce “It was a big one!”).

I get plenty of stares in the mornings when we go for our daily walk and he is pushing a small shopping cart full of stuff down the sidewalk as part of his “Sensory Diet”. I’ve learned that when you have a child with SPD or any other special need there is no one way to parent and that reading a parenting book made for “typical” children just isn’t going to cut it! I’ve had to be creative and think way outside the box to help my son move outside of his comfort zone and make progress. Sometimes ideas work and sometimes they don’t, but the important thing is to keep trying.

So as of today we are still working on potty training. After our first time success outside, my son has since refused to even attempt to sit on a toilet and continues to remind me that he “just wants to go poo poo on the ground in his diaper”.  I am still awake late at night with a small light and dental tool trying to clean his teeth while he sleeps and we continue our daily morning walks with his small shopping cart piled high as he pushes it down the street of our neighborhood.

While we continue to try to make progress, I remind myself that one day he will just get it! It seems to happen that way with my son; one day he is refusing to do anything and the next day he has mastered whatever it was we trying to get him to do the day before and acts as though there was a never a problem in the first place!

I guess that’s parenting for ya!

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About Gwenabee98

I am a stay at home and special needs advocate to my 3 year old son who was diagnosed with Sensory Processing Disorder at 18 months.

    Comments

  • Tonya


    You said it well, my friend. I wouldn’t change (my) Blue for anything-he has taught me how to be a better mom as well as a better person.

  • kristi


    Kudos! Great post. :)

  • Patty


    I can so relate! I catch myself doing so many things I never envisioned. Just yesterday at the grocery store, I bought chocolate covered granola bars, because I was hoping I might be able to convince my son to try them. I thought, holy cow, I never thought I’d be trying to get my kid to eat chocolate, but here I am. I am happy when he tries any new food, no matter how unhealthy it may be. I practically threw a party when he tried corn dogs.

    Great post!

  • Heather Finnegan


    You just described my son to a “T”. Except we didn’t get a diagnosis until he was 4 1/2. My son was 4 when he finally peed in the potty, and 5 before he was somewhat consistent at pooping-and then last night he had an accident(he’s gonna be 6 in June)! NEVER understood when kids would come to my 3 year old preschool class not potty-trained. I GET IT now!!! And eating new foods-UGH!!!!!! At least we know that we are not alone! :)

  • Jakesmom


    I think you have described a lot of our lives with our kids….especially the teeth brushing and the dreaded haircuts. YIKES! Jake can really clear the hair shop. We use a backpack full of stuff for his heavy work so we get a lot of stares when he prances by on his toes with a huge backpack spinning in circles because he just can’t get enough vestibular input!

  • Julie


    I watched my older sister have 2 daughters, and I thought I could be a mom, too. After my challenging son was born, I seriously felt duped. Nothing was the same as her experience. Everything was 1000 times harder and she and my mom (and 99% of my girlfriends who were moms) thought everything I did was wrong. We first discovered my son was gifted, and thought that was why he was unusual and everything was hard for him. Then, when he was 6, we found out he has Tourette Syndrome. Last year, at 9, he was diagnosed with SPD. There is a lot of struggle in each day, but over time, I do see progress. Hang in there.

  • April Gear


    It seems like you’re writing my life story. It felt like no one understood what we were going thru with my son. My sister kept asking me what was wrong with him and why he didn’t do this or that like other kids. She always wanted to give me advice that she got from other people who didn’t even know me or my son. She is childless and didn’t know what it was like to try and deal with the attitude from others when they would hear what my son did or didn’t do. I always felt like others thought i was a bad parent because he had freak outs over “nothing” and was always behind, even though the doctors and specialists told me i was a wonderful parent and they could tell i really cared about my son. Its horrible when people judge your situation when they are not there to see what’s really going on and don’t know what it’s like to have a child with special needs or sensory issues. I just found out about spd and now it all explains his behavior and lag in development. I’m so glad to find sites like these and hear from people who have been there and know what it’s really like to go thru all of this.

    april gear

    • Stacey Robinson


      I’m so glad my post has struck a cord with so many other parents! It sometimes does feel like you’re the only one going through it so it helps to hear that other parents have similar struggles!

  • Allie


    Why have I not thought to clean teeth and clip nails while my little guy sleeps?! Brilliant idea! Good luck with the potty training.

  • Kimberlee


    Parenting is pretty much what I had expected. Although I didn’t anticipate it taking longer to acquire the usual skills such as walking, talking, toileting you all know them. I consider myself one of lucky ones because I decided to teach my child from the start with repitition and positive reinforcement. So without really knowing it I started ABA like therapy from day 1 on a child I wouldn’t find out was autistic until a few years later. This actually helped my kid out a lot, and minimized some of her symptoms. I tell people I was blessed with my child and the ability to raise her. Thanks to her I know do ABA therapy for other autism children.

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