I’ve been thinking lately about the assumptions that get made when one’s condition is “invisible”. My husband and I were once as guilty as anyone of making dangerous assumptions. It was clear early on that our son, Coleman was quite bright. He was speaking in sentences at 14 months old, and had taught himself to read by age 3.
So before we knew Coleman was on the Spectrum, we met his shortcomings like fine motor deficits, and poor executive functioning with ZERO patience and, at times disdain. We said things like, “Coleman, most kids your age can dress themselves by now, this is ridiculous.” Oh the multitude of things we did wrong, and handled badly. Yep. Lots of life long parental guilt from stuff like that.
I think what leads people to believe a child “won’t” is that the child’s lack of ability in a particular area is inconsistent with what they know to be true about the child. It’s weird. I think most of us do it. Instead of thinking, “This is inconsistent, where’s the problem and how can we fix it?” We think, “This stinks! I hate it when he’s _____(fill in the blank: willful, resistant, lazy) like this!”
What’s really sad is when it happens even AFTER the child has been diagnosed and has an IEP in place. This is especially true for kids at the higher end of the Spectrum, like NLD and AS because:
- a) they look perfectly capable
- b) most of them are of average intelligence (or above) with ridiculously large vocabularies and
- c) most lack the social savvy to NOT debate with adults as if they are peers
So teachers, and administrators assume, often after some verbal exchange they’ve perceived as disrespectful, that the NLD/AS child in question is really just a “master manipulator” or worse.
When I was in the sixth grade, a guidance counselor called me in to her office and informed me that my teachers were telling her I was obnoxious. I’ll give the benefit of the doubt to everyone in my entire life who misunderstood my behavior and intentions. Way back in the olden days it was a firmly held belief that girls didn’t get Autism or Asperger’s Syndrome. However, I’m still trying to understand how that was supposed to be helpful to an 11 year old. Let’s see, at a time in a child’s life when the most important thing in the world is to be liked and accepted, let’s call her in here and tell her all her teachers think she’s a jerk. That’ll be good. (ugh…) Still, it was moderately excusable almost 30 years ago.
But we know better now. And it should be that once we know better, we do better. Yet the biases and dangerous assumptions continue. I call them dangerous assumptions because of what they can lead to. If we assume the worst about a child, we will often “fish our wish”. Henry Ford once said, “Whether you think you can, or you think you can’t, you’re right.” The same holds true with what we think of our children. I truly believe that children will do what we expect of them. If we assume the best about them and expect their best from them, that’s what we’ll get.









Comments
CircleTimeMommy
“I think what leads people to believe a child “won’t” is that the child’s lack of ability in a particular area is inconsistent with what they know to be true about the child.”
I LOVE this. I just had an IEP meeting during which I said almost this same thing. Because my son (just turned 4) can read and knows the answers to most of the questions he’s asked at school, the teacher tends to assume he doesn’t answer because he won’t. However, 98% of the time, it’s actually b/c he can’t. He has a severe language disorder and a major word retrieval problem, but because this is inconsistent with his other strengths, they forget or are unsure about his processing difficulties.
It can be heartbreaking to have your child thought stubborn or lazy for the very deficits that landed him in developmental preschool! I think I did get through to the teacher, though, and hopefully she can give grace while keeping expectations high. As you say, the discrepancies between obvious strengths and invisible weaknesses make it difficult to know how to manage expectations for them from day to day, but it is SO crucial to assume they want to do their best and are working harder than we can imagine! Thank you for this post!
Trish
Beautifully stated, Laura! I find myself slipping into various assumptions about people, including those closest to me, and get so frustrated when I realized what I have done.
Heather
Beautifully put.
Aspie House
Thanks, Ladies. I’m glad you liked it.
spdmum
This is an inspiring post. It is so easy to assume a lot of our childrens actions are deliberate in some way.
Thanks for reminding me to be patient.
Candis.
Spectrummy Mummy
You know, I feel like I’m more guilty of this with Cubby than with Pudding. Her challenges are just that bit more obvious, so I cut her more slack. Thank you for the reminder that I need to afford both of my kids the same patience. One more question: where do I get more patience from?
Martianne
Oh, how many times my husband and I have caught each other (and ourselves) doing just what you talk about — especially in terms of my son (not) dressing himself and his potty issues.
And, the part about expecting the best reminds me of a post I wrote about a lessons my daughter (re)taught me on Mother’s Day: http://traininghappyhearts.blogspot.com/2011/05/how-to-deal-with-non-compliance-lesson.html
Mama Pants
Very well said!