I’ve always known something was a bit “off” with Seth. When he was a baby and I changed his crib sheet he would get very upset when I put him down and demand to be taken out.
hen he was 2, he wouldn’t walk or touch grass, dirt, sand, anything except pavement. He also seemed to have trouble socially. He didn’t make friends easily and hung back and watched kids play instead of joining them. He will do anything to keep from getting dirty. He won’t finger paint, play in the sandbox, and he hates getting marker on his hands. He hates crowds and loud noises.
A few weeks ago we were at an event where kids can climb into different kinds of trucks and touch them and honk their horns. Well, Seth couldn’t stand it because there were horns honking so we had to go home. He covers his ears when music is too loud (a normal volume). He is a very picky eater, not eating anything “mushy or slimy” like melted cheese, mashed potatoes, or scrambled eggs. He’s also very sensitive to pain and cries for the littlest bump and can’t stand to have his nails cut.
I thought Seth was just quirky and shy.
This past August it was time for Seth to begin kindergarten. We sent him to the public school as it was very good and he was excited to begin school. Within a few weeks every afternoon after I picked him up he would have a meltdown. I thought it was just because he was tired. This continued for 2 months and his behavior at home got worse.
At the end of October I pulled him out of school and began homeschooling him. He began to do a little better but he continued to have meltdowns. I decided he was just being “passive aggressive”.
I have a few close friends whose children have Sensory Processing Disorder. As I talked with them about what was going on they suggested that Seth might have SPD and to talk to his pediatrician. Almost immediately his pediatrician said he had SPD and gave us a referral for occupational therapy. We had our evaluation with the therapist 3 days ago.
So that’s where we are now.
At first, I was overwhelmed (I still am a little) and I had many questions. I’m now learning as much as I can about SPD and am trying to embrace it instead of being angry and bitter.
One of my thoughts when I we got the diagnosis was “why me? Why can’t I have a normal child?! He’s so smart. He’s doing work a grade level above. I don’t want to have a special needs child!!!” I didn’t know why God had done this to me.
During this, we realized that my husband also has SPD which he has learned to cope with but still has some lasting effects. We told my parents. Their response was “Isn’t it just a quirk? Almost everybody has issues with tags on their clothes. Why does he need therapy? He’ll learn to cope.” My husband’s parents didn’t say a word, but called back to ask more about it.
So that’s my new normal. Learning more, being very aware of how I act to Seth, and trying to figure out how to handle meltdowns and answer peoples’ questions. I’m ready to embrace my new normal.