During one of my book signings last year, I was asked by a mom how you can tell the difference between sensory problems and behavior problems. It made me smile. Why? Because in my experience, this is hands down the number one parenting concern for those raising a child with Sensory Processing Disorder. It always has been and I suspect it always will be.
And since getting a diagnosis of SPD is becoming more common at an earlier age (you can’t say enough good things about the value of early intervention, can you?) — we as parents have an even harder time telling the two apart.
A 2 year old with sensory issues is a tantrum throwing machine. Been there. Done that. And it sure doesn’t end at 2, does it?! You could say the same for my 10 year old!
So, I figured I would give my take on this — but please remember, this is my non-doctor, non-therapist, non-medical professional of any kind, advice, and in no way shape or form should you consider it medical advice or substitute it for your own good judgement. Deal?
In a nutshell, my advice is the same advice that Dr. Ostovar gave in her interview on Hartley’s Life With 3 Boys last year, “Be a detective, and try and determine what caused the reaction.” But, I am going to give you some specific examples that will hopefully help pave the way for your own clue-finding. I am using younger kids as an example (preschool-elementary aged), but truthfully these examples apply to EVERY kid at EVERY age.
By default, we should start with the theory that whatever is bothering our child is sensory related – or caused by some inability to react appropriately. Why? Because I much prefer to go with Dr. Ross Greene’s theory that children do well if they can (as opposed to the theory that children do well if they want to which is unfortunately more common). If your child could react adaptively, I believe he/she would.
Which means we are assuming that that the tantrum your child is throwing isn’t just willful disobedience by an over-spoiled and over-coddled child. You don’t buy into the idea that your child is “just spirited” do you? I didn’t think so.
Before we begin sensory vs. behavior, let’s talk about the difference between a tantrum and a meltdown.
A tantrum is a manipulative fit (crying, screaming, throwing themselves on the floor, etc.) aimed at the child getting what they want from you – example being, “I want ice cream!”
A meltdown is an emotional response (crying, screaming, throwing themselves on the floor) to the child not getting what they need – example being “I want ice cream!”
Confused?
Sure you are.
Children don’t always have the vocabulary to explain their motivation to you in the moment (if at all). So, often the words they use don’t give us a clear enough picture of what the problem is, or more importantly how to solve it. That is why you have to be a detective!
Although both the tantrum and the meltdown sound the same, and include some of the same behaviors, they are not the same: determining why the challenging behavior is occurring is where the answer lies. If your child is upset because they lack the skill to deal with the situation, it is a meltdown – which by definition means that ignoring it won’t make it go away, and punishing it sure won’t help either. If they have the skills to deal with the problem, then it *could* be a tantrum – but those are MUCH more rare than you think.
As parents we, for some reason, seem to gravitate towards the idea that our kids are attention seeking or manipulative, and that therefore all meltdowns are tantrums. The reason I believe we do this is because if our children are misbehaving due to those reasons, it requires less of us to fix it. Conventional wisdom would suggest we could ignore the problematic behavior, and it would go away – or even better – we could punish it away. I don’t know about your house, but mine doesn’t work that way. If I could time-out-away the problematic behaviors for ANY of my kids, my life would be ridiculously easy. But, alas, it’s not. : )
So let’s talk about how to play detective – sensory detective and skill deficit detective.
First skill deficit detective – detective hats on.
Scenario #1 – Suzie was with you when you bought ice cream at the store and she really wants some. As soon as you get in the door she is yelling. “I want some ice cream!” And when you say she has to wait until after dinner, she is in full flip out. Is that a tantrum or meltdown? Could be a tantrum – could be a meltdown. Does little Suzie have the skills required to wait? Or is waiting hard for her?
In our house, Matthew is awful at waiting. He gets an agenda in his head and by god there is no turning that child around. So, we have set it up to not push his waiting skills further than he can handle, or he is going to have a meltdown. For example, if you see us at McDonald’s, and we have agreed ahead of time (key here) that he can have ice cream, it is ordered with the chicken nuggets (mind you, we request a smaller than normal cone). He can eat both at the same time, and will eat both. At home, he knows that the routine is dessert (if any) will be after dinner – a predictable rule. But his ability to access those waiting skills at McDonald’s is greatly diminished due to other factors (tired, hungry, overwhelmed, excited, etc.) so I don’t test his waiting skills when he is less likely to succeed. You know your child best; did little Suzie use up all of her waiting skills getting from the moment you put the ice cream in the basket to the time you walked in the door? Maybe that was good waiting for her and she deserves the reward.
Scenario #2 – Little Suzie is playing in the cul-de-sac, and along comes the ice cream man. The kids come running to the street from houses away to greet the truck, and Suzie runs with them. But wait. You don’t buy ice cream from the ice cream truck – because it is filled with more chemicals than milk – and this is just something that is an existing rule for you – and Suzie knows it. Normally, when Suzie hears the music from inside, you offer her a juice bar, but this time since you are outside, and all of the kids are running to the truck as you are attempting to take her inside, she begins to lose it. Screaming, yelling, demanding ice cream. Is this a tantrum? I would say this one is more black and white – and it is a meltdown.
Why? My interpretation is there is a good chance she is having an emotional reaction to the feeling of being left out, not just wanting ice cream. This isn’t about what is better, a juice bar or an ice cream, or whether she knows it or not, it is about everyone else in the cul-de-sac getting to do something that she can’t – and wants to. Having the skills to handle feeling that left out, is out of Suzie’s developmental ability.
Now let’s talk more about how to tell when it is specifically a sensory issue. Detective hats on.
What we know about Little Tommy: Tommy is a sensory seeker; he craves deep pressure touch, and can be very busy at times. He likes things to go his way, and can be a ‘black and white’ thinker.
Scenario #1 – Little Tommy is playing on the floor in the family room. He has cars out, and he is pretending that they are having a race. His brother, John, walks up and lays down next to him. At first they seem to be playing fine, but then all of a sudden, out of nowhere, Tommy starts to yell, and punches John over and over. Why did this happen?
Knowing the very little that I do about Tommy, I am going to guess one of two things happened: either his brother John happened to touch Tommy, perhaps too lightly, and that sent him into a sensory-meltdown (fight or flight). Or perhaps, his brother John may have broken an implied rule of the game – perhaps in Tommy’s mind the red car ALWAYS wins, and John made the green car win.
Needless to say, in both cases, it appears as though Tommy doesn’t have the skills necessary to respond adaptively, so he acted badly. The important part here is to recognize what the problem is, and address that – not just the reaction. Please note – this cannot be ‘punished’ away. All the time outs in the world won’t change Tommy’s mind about the NEED for the red car to win! You knew that, right?
Scenario #2 – Little Tommy has played hard all day, first at home with his mom, and then at developmental preschool all afternoon. Mom picks him up from school at 3:30pm and needs to go grocery shopping with him and his baby sister. Once in the grocery store, Little Tommy can’t keep his hands to himself, he is bugging the baby, can’t stop touching things in the store, and goes so far as to knock something off the shelves. Mom is feeling frustrated. By the time they get to the checkout counter, the overhead speaker comes on, “We have a special on crab legs today….” As soon as it starts, Little Tommy starts yelling and having a meltdown. Tommy isn’t usually sensitive to sound, so why is this happening?
Given how long Tommy’s day has been, the grocery store only made things worse. All of the lights, sounds, visual stimuli and people – that has Tommy on sensory overload – even if he is a seeker. How do I know? By the fact that he has had a long day – with new skills being taught and practiced at school, and by the way he was acting in the store – that behavior is caused by his sensory issues. And when that person came over the speaker, it may not have been louder than usual, but that was more than Tommy could handle – enter meltdown (not tantrum, because Tommy does NOT have the skills to deal with the grocery store after school — plain and simple).
How are those detective hats fitting? Are you getting the hang of this?
Determining the answer to “Is it sensory or is it behavior?” is a really complex issue — that said, you know your child better than anyone else – you are the expert!
Take the time to think about what is going on, because when you begin to recognize where the problems start, and why they did, the problematic behavior is avoidable — and doesn’t require you to punish more. This is 2011 and we should all have evolved past the “time out” strategy — special needs or not!
Have a question for me? Leave your most challenging sensory vs. behavior question below and see if you can stump me!






Comments
Lin
hello,
my name is Lin… im learning all this.. i can be a good judgement of what the 2 are… i just need to know how do you get a diagnosis ?
thank you…
Lin
Hartley Steiner
Lin – to get a diagnosis of Sensory Processing Disorder you need to see an Occupational Therapist that is trained in sensory integration and can do an evaluation. There is a database of OTs at http://www.spdfoundaiton.net to get you started – or join http://www.sensoryplanet.com and post your question on the forums! Good luck! Hartley
Jennifer
OMG, this is WONDERFUL. Thank you!
I want to send this to my mom, who takes it as the sign of a Manipulative Child combined with Poor Parenting skills whenever my daughter shuts down and opts out. (Her alternative to meltdown; she seems to alternate between the two but leans to shutdown if she can manage it because–I believe–her Personal Dignity feels damaged if she melts down in front of other people, and it’s the one small thing she can sometimes control.)
I have nothing stumpable–just wanted to thank you for the post!
–Jenn
Hartley Steiner
Thanks for the comment Jennifer!
Joyce Herrmann
Thanks for posting this Hartley. Jennifer, I too have been called a poor parent. I know others that have too. We know what is best for our children no matter what others say!
Susan
Thank you for this. Very helpful. I may try to stump you later but at the moment I’m overwhelmed at the process of trying to determine root causes. Just living/getting through the days is exhausting enough! But I will dig deeper because I can tell that this is exactly how and what I need to do. Thank you again.
Hartley Steiner
It is exhausting, isn’t it?
The good news is that the better you are at recognizing root causes, the better you are at PREVENTING the problem. Let me know if I can help!
Linda
Ellen Notbohm is a great author on autism and all her books address the sensory/behavior connection. I suggest reading “the Behavior Equation” from her book, The Autism Trail Guide. You may be able to find excerpts on the Internet. In short, the equation is “Behavior = you + me + environment,” in other words, the environment and the way the adults in the situation handle things, leads to the child’s behavior. My experience as a mom of two older kids with significant sensory issues, is that things that start off as sensory related will eventually turn into a learned behavior. Example: My son had problems the fire alarm at his school. First time he experienced it, it was definitely too loud and caused tremendous anxiety. After that he would freak out at the mere mention of a fire drill. It took 6 years for him to get to a point of being able to tolerate fire drills.
Hartley Steiner
Linda – Ellen is great, isn’t she?! Often times trying something new, or experiencing something new (fire alarm, food, playground, etc) is a ‘one shot’ kind of thing for our kids. If it goes well – they love it. If it doesn’t go well – it triggers the fear of the first episode. I am glad to hear your son got over his fear of fire alarms! I still keep my son home on fire alarm days – one day a month we get a “Hookie Day” together.
Valerie
As an OT I can’t help but give you my “two cents” regarding playing hookey on fire drill days. I would recommend finding ways to help your child learn to cope with the fire drill rather than avoid it since one day it may not be a drill and he will need to exit the building to possibly save his life. The adults will be dealing with many children and may not be able to figure out how to get him to a safe place if he is melting down if they have not figured out ahead of time how to help him. This will be true when he is an adult as well and may be in an office building, apartment building, etc. when a fire alarm is set off. It may take years, like the other child who took 6 years, so no time like the present to start the process.
nita barnes
this was an AMAZING article! my daughter is on the fringe of being diagnosed with autism and we experience this daily! thank you!!! i plan on sharing this on my fb. SO many people do not understand! oh well, such is life i guess. thanks again for a great article!
Hartley Steiner
I am glad you liked it Nita! And thanks for sharing it with your friends and family – I hope it helps!
j. williams
thank you for this…stumbled upon at just the right time….my son is 7 and we are just getting diagnosis coming in…he has add and tourettes and the dr.s’ think nvld…but omg this sounds so much like him, and as embarassed as i am to say it, these strategies sure take a load off of the everyday fight we have -because i see now i am the one who is setting him up for failure- just because i need get my errands done without thinking of what i am interjecting him into….again thanx for the wonderful insight!!
Karen
Great post! My apraxic and SPD son is 9. We have a pretty good handle on what could set him off now, and how to prevent those meltdowns, but I wish I’d had this insight when he was younger. It’s hard to trust your instincts when everyone is telling you that you are a permissive parent and that he wouldn’t ‘misbehave’ if you were more firm with him.
Susan
Great info! So vitally important for anyone who has a child with SPD in their life. I wish I had been able to explain this to my close friends when my little man was a toddler. They didn’t get it. I realized that he couldn’t help his meltdowns, but didn’t understand the difference between tantrums and meltdowns- and thus, couldn’t explain it to others. My son didn’t have tantrums, I believe they were all, or 99% meltdowns, when he was a little guy.
Joanna
Excellent post! As an OT, I get this question all the time and help parents be the detective. Whew! I can be so hard. As a parent of 2 ASD boys, I find myself needed detective help myself. Well done, Watson! Printing this out and bringing it to work with me!
Hartley Steiner
Thank you for sharing the post Joanna! I hope it helps.
Missy
Awesome, awesome article. Thank you so much for this.
It is SO HARD to try and decide whether the issue is a true behavior problem or if it is a sensory/autism problem.
Can you come live with me? =)
Catherine T
Great info – thank you, I have a question for you, my Daughter was diagnosed Asbergers Sep of last year she turned 5 in March, she has done many of the behaviors you have listed above plus more and your reasons make so much sense mind you!
Anyway, my daughter has a tendency to have very willfull behaviour and non-compliance all while having a little rhy smile on her face – however at this point if she is still pushed yet further to comply after running off or not doing as asked ect…she will then have extreme emotions/reactions towards being touched or even forced to comply….why does she start this behaviour with this little rhy smile – when what comes after or during is genuine meltdown material??
Hartley Steiner
Catherine – It is hard to know what the situation is to tell why she is behaving a certain way. What I can tell you is that my middle son GRINS from EAR TO EAR as soon as he is in trouble. It is nerves. He can’t stop it, and the older he has gotten the more he is embarassed that he is smiling because he thinks he is going to be in trouble for it. For my youngest son, who may run off still, if he is forced to comply (safety issue), then I work with him on the “If you want to go see something, you have to tell me with your words – say, ‘mom, I want to go look at that sign’” He has come a long way with this – and yes, often times he just wants to run away and knows I will be upset. BUT he lacks the skill to communicate his needs to me before acting on the compulsion to go read the sign (typical Aspie thing!). I hope that helps!
Ilana
In every example you gave, kids are having meltdowns rather than tantrums, so do you never believe kids have tantrums?
Hartley Steiner
Ilana – Yes – all kids have tantrums, throw fits and otherwise act badly even when they have the skills to do otherwise. But usually – at least in my experience – it is obvious. Example: My 7 year old may be told that he isn’t going to get his iPod time because he has been arguing with his brother too much and hasn’t earned it. He will be upset. Take a fit – maybe stomp his foot, cry, yell, run to his room. But it is short lived. He is told that isn’t acceptable behavior, and we move on. If we took iPod from my youngest son (5 Aspie) he would meltdown for an HOUR because he lacks the skills to deal with disappointment, and a change in his schedule. That is a meltdown. He can’t shift to new schedule on the fly – so that isn’t a consequence for him. Does that make sense?
Jo
I understand what you are saying so how do you deal with a meltdown especially in a public place and how do you prevent them? If time out won’t help them what does. The thing i find so confusing is how unpredictable it all is, how they will react to something one day and not the next and “knowing” what will help without overstimulating even more!
Lisa
Thank you for writing this. I struggled with this when my son was younger and more afflicted with S.I.D. I have learned that teaching coping skills through any scenario seems to work best. It is so difficult, especially when you are new to the diagnosis, to separate sensory from tantrums because they look so similar. Your article reminds us to slow down and take the perspective of our child(ren). Remembering to not overload his or her day and to have compassion for an overwhelmed child is key. Thank you!
Jennifer
This is very helpful. My son is 6 1/2 and we are STILL trying to figure out what sets him off sometimes. Yesterday was a prime example. We went to ST after a long day at school (not our normal schedule) and then out to dinner at a loud restaurant. Came home and DS was really down and watching a show. When I told him it was time to go to bed, he had a complete meltdown because he was already too low. We went from one extreme to another.
Schedule changes are a huge issue for us. Hindsight is 20/20 and we always have that a-ha moment when looking back at the events. I need to be better and charting what the changes were and anticipating what we can do to help him cope with these types of changes.
Thanks!
Jes
Hi! I really liked your post! It helped a lot. We’ve been going through this very situation.
I was wondering if you could give me some suggestions on my situation.
So my daughter Lilly who is 2.5yo was dx with SPD and is currently in OT. Any time we get to the doctors office, or even a place that looks like a doctors office, no matter if she is having a good day controlling her emotions or bad day, she instantly Panics..Major Meltdown. Drs. Nurses or even people just needing to give me paper work and it escalates 10x higher. Now she’s never had a bad experience, and by that I mean she’s never had to be over controlled by people she didn’t know, I usually suggest that I touch her and hold her since she is familiar with me. I know that in her mind she’s probably having a bad experience every time she enters these places, but I have no idea how to ease the fear. Any ideas?
Hartley Steiner
Hi Jes! I would suggest that she is upset by the environment – the lights are horrible in offices, smells, sounds, it could all be more than she can tolerate. And yes, she probably has had an experiece (no matter how small it seemed – like a bright light or an unfamiliar high pitched noise) that made her scared of the doctor’s office. I would suggest getting lots of kids books on doctor’s offices and reading them with her. Talk about how she feels (assuming she is verbal!), and maybe she can articulate what she hates. You never know unless you ask her!
Sarah
Thank you so much for this. My four year old son has been diagnosed with SPD with his OT and is a seeker. I have never heard about seekers needing everything to go their way and everything is black and white – that is SO my son.
He just started preK and is so worn down after school and then we have to go pick up my daughter everyday he yells about something that he wants (fast food, his car has fallen in the door, he wants to go to kroger for hot wheels…)and yells the whole 40 minutes in the car about it – he is just overly tired and cannot handle it I guess.
One thing I cannot figure out – where does SPD fit on the spectrum. Noone will tell me. I believe that it is on the left side of the autism spectrum – would you consider someone with SPD and sensory seeking to be “Autistic” if they do not display other typical autistic behaviors. I know every child is different, but we have been curious as to where SPD fits in???
Hartley Steiner
Hi Sarah! I want to be crystal clear here – SPD is NOT Autism. It is NOT on the spectrum. Sensory Processing Disorder is a neurological condition that affects the brains ability to send and recieve sensory messages. Autism is a developmental disorder that is characterized by language and social delays along with repetitive behaviors. And, although nearly 80% of kids with Autism have sensory issues, the opposite is not true. 75% of kids that have SPD have it as a STANDALONE disorder.
Good luck with your little guy and thanks for being a part of our community!
Lisa
I liked most of your information, but was a bit upset by the “You don’t buy into the idea that your child is “just spirited” do you? I didn’t think so.” I have a three year old that most people think is difficult. I have read a few books about spirited children and I think that a lot of the handling/coping techniques are very similar to what you are describing. Where do you see the significant difference?
Hartley Steiner
Lisa – Thanks for the comment! The significant difference between using the term spirited and acknowleding specific deficits for kids is that children like mine – with neurological challenges, skill defcits, developmental delays, and more have real diagnosable medcial concerns. The ‘spirited’ label suggests they are willful, stubborn, or just difficult. And although my kids can definitely be those things – when they are having a meltdown due to sensory or skill deficit problems the label ‘spirited’ does NOTHING to explain what is going on or more importantly how to help them (ie: teaching executive skills, handling emotions, reducing sensory input). I feel that ‘spirited’ is a dismissve term that hinders other people’s understanding of challenging children and can lead to a Behavior Plan in school as opposed to an IEP with accommodations. I hope that answers your questions! Thanks again!
Jo
What a brilliant article! I may print it and hand it out when my 4 year old is having a hard day and having a melt halfway home!
Hartley Steiner
Thanks Jo!
Susan S.
Had an Aha moment after talking with my son’s school counselor yesterday. I had to explain the difference between tantrum and meltdown to her. All the “advice” she was giving me to “help” my son be able to do homework after a school day (that leaves him spent), were tactics a person uses for behavioral issues, not regulatory or sensory issues. I don’t think she really gets it, still. I’ll have to print out this blog entry and give it to her.
Hartley Steiner
Susan – I am so glad you recognized that you were getting the wrong intervention! Homework is a learned skill – having the stamina at the end of the day to actually accomlish homework is incredibly hard for kids. Work into your son’s IEP modified assignments, or depending on how old he is, no homework at all until he is older!
katmoody
This was a great(!) article. While it stated some things I have learned over the years, it made me re-think a few other things about our youngest. It’s a bit complicated, though, so I have a stumper for you:
In our house, there are three boys who are autistic and generally play off each other’s triggers very nicely in the middle of a long afternoon (why, yes, that’s me grinning!).
Now, because I’ve been around for a while, I know much of the triggers and intercede often, explaining when appropriate and simply redirecting or providing some sensory intervention (deep pressure hugs work well, but just aren’t always tolerated). So here’s my stumper, and it’s a two-parter:
Logan, my youngest, has multiple diagnoses, including autism, epilepsy, and apraxia. He is nonverbal, and it’s difficult to impossible to understand how much *he* understands, much less react to his freak-outs and hitting sprees. After a dozen years of hands-on training, I generally can figure it out, but not often. How do you suggest narrowing down the list of ‘culprits’ in the nonverbal child?
The second part of the equation – we’re gearing up for a long summer and are brainstorming family activities that are sensory-friendly but also challenging and engaging for our crew. How can we best engage all three boys, with their varying levels of autistic sensory issues, in the summer fun without overwhelming them?
I do believe you said something about a challenge? I’m sure this is not that great of a challenge for you, and I do have many ideas myself (and hey, I write, so guess what’s going on my list of things to write about!), but I always end the summer feeling like I didn’t do enough to challenge my boys’ socialization with not only each other but also the outside world. I find that the combination of seizure activity and sensory problems makes this a much more thoughtful decision-making process rather than the spontaneous ones that most families enjoy during the summer. I could sure use an extra brainstormer – you up to my challenging questions? *gets out the notepad* I am waiting patiently for your response.
And hey, have an awesome holiday weekend!
Kat
Hartley Steiner
Hi Kat! I would love to brainstorm with you!
Logan – Nonverbal children definitely make things more challenging, but not impossible. You seem to be ontop of things, so I suggest you narrow down the list of the most likely suspects (ones you already know are triggers for him) and use photos/clip art of them to represent them in a binder. When the meltdown starts (assuming you haven’t cut it off at the pass), grab the book and see if you can’t get him to point to what is going on with him. Too loud? Too close? My brother’s a meanie? Ok, probably the last one would get pointed to each time. ; )
Summer – What is it they say about the best laid plans? Good intentions? Yeah…. One of the things I have to balance at my house (like you) is a diverse set of needs – both sensory and behvaiorally. So, I spend at least one day a week doing something “NORMAL” that is just slightly out of the box. Example: My youngest is delayed in large motor skills, my middle son is 7 and very physical/active, where as my oldest exhausts easily and is generally cranky when faced with physical exersion. So, perhaps I will take them to a playground away from our normal area (new sights, sounds, smells) – my middle son is excited for the novelty, my younger son can practice motor skills, and my older son might actually find something that holds his interest for more than a minute.
To take this futher – I might take them to a restaurant. It will test their skills in different arenas (waiting, new foods, manners, social norms – ie: giving up their seat for an adult, ordering their food, using a public restroom). If I am super crazy, I might do this AFTER the park to see how they can do when they are tired and hungry.
I am not sure this is what you are looking for, but for me this is where we need practice. We call them ‘adventures’. Some days I don’t even tell them where we are going or why! Now THAT tests them! Ha!
On our to-do list this summer is large public places I am afraid to take them alone (ie: Zoo, Aquarium), local area (walking through town, visiting multiple stores, library), sightseeing (tourists in nearby Seattle) and some things they have asked for (a visit to the firestation, touring a factory, visiting a farm, and/or picking apples/berries).
Ok – and since you mentioned you are a writer – will you write for us? Love to see your summer ideas with three boys!!
Thanks Kat!
Katrina
I was just getting ready to recommend this post and the site to a group of parents I’m a member of and thought to check for a reply. I’m so glad I did.
I loved your ideas. We’re all about social interactions this summer – but we’re also about family time. We’ve seen some great gains in practicing several of the same kinds of things you mentioned, but on a smaller scale.
LOL about writing for you – I actually signed up to do so when I first learned about the site but forgot the address for the longest time. I would love to write specifically about sensory things – I just wrote an article about summer play, sensory style for another brand new site. I might have to try and do my next one for SPD Blogger!
Thanks for answering the challenge. I find that addressing behavior problems for the non-verbal child takes an equal measure of patience and understanding. You can’t gain either one without practicing the other.
I was tickled to see you address my question. Logan isn’t quite ready to pick pictures – but will pick out or point to physical representations of things. Stepping stones. 
Thanks again — send me a line any time about writing. I would love to do so. Just keep a tad bit busy with this thing called parenting. (among other things, like the rest of life!).
Kat
Paulette
Thanks for a great article and a good reminder.
We made a mistake yesterday with pre planning. DD is 13 and many sensory issues have resolved. However the hormone issue does make it worse monthly. We made an unplanned stop at Target on the way to the movie she had been planning to see all week. Opened her car door and she was crying, arms crossed, head down. I recognized the meltdown and realized we should have prepared her, just didn’t think of it.
MarfMom
I’m beginning to see that my son’s meltdowns are very sensory based. He has autism and, I believe, SPD (no formal dx yet but the signs are quite obvious). So here’s my question: since many kids with autism do have SPD, do you think that behavior therapy is not useful? Or when do you think that it’s appropriate vs OT is needed? My son has meltdowns every day and often hurts himself or others in the process (nothing terribly serious, but it’s distressing). He’s also just aggressive in general. He’s in OT, but we’re also looking at starting ABA (whatever “behavioral therapy” early start has been providing has not done anything). I’m hoping working on both sensory and behavior together will bring results. Do you think that nearly everything can be traced to sensory issues though, and therefore behavioral therapy would not be useful?
Hartley Steiner
Hi MarfMom! You are asking a hugely important question – If it is sensory/skill deficit does behavioral intervention work?
This is where I have to remind you that I am NOT a medical professional, therapist or docotor of any kind. I am a parent. You knew that though, right?
Background info: For my oldest son (he has paved the way for the younger two!), we have seen three behavioralists. Each one suggested that we could do a functional behavioral anyalysis to determine the cause of my son’s challenges and then put togehter a standard behavioral plan to address them. We never did. (I should mention here that each of the behavioralists agreed with me that I had a firm understandig of what was going on with my son and how to help him and that they could not provide additional value.)
We didn’t go down the behavior path because we didn’t feel it would benefit our son(s). We have uses Collaborative Problem Solving in our home (www.livesinthebalance.org) for the past 7 years among MANY other things (like tools from Cognitive Behavior Therapy – CBT and Dialectiacl Behavior Therapy -DBT, plus things like Kelso’s Choices for problem resolution). And CPS is a very different approach to viewing behavior.
I know in my heart of hearts that my son(s) would do better if they COULD. I set expectations and we work to get there – no star chart or time outs required. So, behavioral therapy/modification wasn’t what my son(s) or my family needed.
Now, that is obviously oversimplified, and YES there are a bagillion things we are working on daily, and YES my son(s) have meltdowns, but I do not rely on the behavioral model to resolve our challenges – for any of my kids no matter their diagnosis.
Now your questions:
Is Behavior Therapy useful? Since I have never done it, I can only say that many people use it and it seems to work for their family.
Is OT more appropriate? I believe firmly in the value of Occupational Therapy for kids with sensory issues. All the punishments/rewards in the world will not solve a sensory issue. OT – with a sensory integration focus by a trained and experienced OT is invaluable for helping your child’s brain better interpret the information coming in – which results in more appropriate motor and behavioral responses.
Can everything be traced to sensory? If your child’s meltdowns (and therefore aggression) are rooted in sensory, then you really have to address the sensory before you can address the behaviors.
I hope that helps MarfMom! You’ve got good instincts – follow them!
Kristin
This is a wonderful posting, so helpful thank you. I especially like this approach “the theory that children do well if they can”
Gina @ Special Happens
Sometimes I have a hard time explaining this to the hubs. He thinks a lot is ‘bad behavior’ and it gets difficult to help him understand this… difficult especially when he’s frustrated and doesn’t have the energy to handle things appropriately himself. His response is always, that J doesn’t “get to get away” with acting “out” just because he’s tired…not understanding that he just doesn’t have the skills to cope with the fatigue from all he’s done in a day. Maybe one day.
Hartley Steiner
Gina – Hubby and I have similar issues – and when he gets ‘angry’ and raises his voice, the kids often comply. But that should never be confused with actual skill acquisition – but try telling him that! LOL We aren’t there yet here – and I think my kiddos are older than yours! Be patient!
Maureen
This article has opened my eyes to my daughter. She was evaluated for preschool and put on an IEP for speech delays but the OT also wants to watch her sensory processing. The child in the grocery store, after a day of other “stuff” melting down while people stare at me giving me looks like I am a bad mother, that is me. I didn’t truely understand what they were telling me about the sensory processing so I was doing research and came across your article. Thank you.
Meredith D
Hartly, I have met you, I love reading your Book it sits on my desk and when I am at a end of rope type of day I read it again and again and get hope! I feel like i was the one at the book signing asking about the two year old and SPD vs tantrum ir meltdowns at the Spotted Cow!
I would LOVE LOVE LOVE to talk to you at some point about my Wonder-Son, we are moving more into the suspected “high functioning” autism status per his pedi and I am confussed, overwhelmed, and LOST!!! He needs so much help and I am wondering and being told not to listen to the Dr’s due to him only being 3 (last week) he is to young to be diagnosed, this from people who had to Google HFA! can you help? this is the only place I could find to reach out to you, I am sorry if it is not the approperate place, I am at a loss!!! You inspire me so so so much!
Thanks!
Meredith and wonder-son
Hartley Steiner
Hi Meredith!
I would love to chat with you more – please feel free to email me directly at hartleys@steinerigroup.com – but please note that I am SWAMPED right now with a ton on my plate, so please be patient with me for a reply!
Joyce
How early can you recognize a sensory challenge? My daughter is 1. She has Fetal Valproate Syndrome. Here are clues that I think something sensory is going on: Since she was born she has crying fits in which she simply can’t stop screaming or crying.She has screamed for 1 1/2 hours until she finally falls asleep. When she is eating,she doesn’t know when she is full. She screams every time we stop feeding her. She has a hard time changing activities – she has an unnaturally long attention span for her age. Are these signs of sensory challenges, or do I need to look somewhere else for answers? Thanks.
Jen
I have a stumper for you! I have a 6 year old with spd, she has been a normal eater her whole life, except she would avoid yogurt and applesauce, but nothing major. Now, she choked at school about 3 months ago, and since then stopped eating. The first month she lived on Danimals yogurt drinks and Pediasure. Now she will eat peanut butter spoonfuls, fishy crackers, candy, and junk food. We have started working with an ot about this and she says junk food is easier to dissolve. So, my question, how do I know this is not manipulative behavior, something sensory or anxiety about choking? Or is it a little of all? Is there something I am missing, looking at it from a sensory problem. I should also mention, she wasn’t a huge junk food fan before.
Patsy
I have two children. I thought my son (SPD) was very prone to tantrums from age 2 onwards, until my daughter (typically developing), 22 months younger than him, hit the terrible twos. The difference between them was so striking and I realised he hardly ever had ‘a tantrum’.
When she tantrums, it’s short-lived, it’s because she can’t have what she wants, and the ‘normally prescribed’ strategies (ignoring, distraction, time-outs) work a treat. Five minutes later – sweetness and light again. My son’s meltdowns last so much longer, are so much more intense, and are completely out of his control.
I now feel so guilty at all the times I tried to ‘do the right thing’ and ignore him, not reinforce the behaviour etc etc, when in reality he was utterly overwhelmed and needed me to understand what was going on. My go-to strategy now is squeezy cuddles till the deep pressure calms him – I just wish I’d understood that 3 years ago.
I have only just found this blog and posts here have brought me to tears of recognition many times today.
Jo
Patsy
That’s exactly what was my son was like and the difference between him and my younger daughter was the same. My son recenekt diagnosed at age 6yrs with mild DCD (developmental Coordination Difficulties) with some SPD.
We have strategies and advice to do but I still find it hard to work out which ones work etc. It’s the behaviour that i find hardest to deal with because when he copes with everything he’s the most gorgeous child ever! I find it very confusing and am just ordering the book “the out of sync child” to try and understand it
Jo
radar5
I’ve just found your blog and I wanted to say thank you! This was an excellent post.
I also have three boys, one of whom is a sensory avoider and has Asperger’s. My youngest son is a sensory seeker and we may also be dealing with Adhd.
I would like to know more about toys or activities for sensory seekers who immediately break new toys because they want to see how they work. Are there any good toys made for the purpose of tearing apart and rebuilding? He’s bored with Legos and blocks. He wants something that’s a challenge to take apart. I want something that we can also put back together. (He’s incredible at building, but tearing apart is more fun. lol)
Janice Keeney
Thank you for writing this. I have always asked what was going on before (whatever she did). My daughter is a senosry seeker as well. She gets frustrated very easily and she is very set in her ways. It has become increasingly harder to get others to understand that sensory issues is not an excuse, it is part of who she is and how we deal with our day. *sigh* so thank you for being a voice for us.
AB
Hmm.. what does it mean to have evolved past the “time out” strategy? To be honest, when my son is having a meltdown or tantrum… I send him to his room to calm down. It is a quiet place where he can regroup and think about what he has done. I don’t know… perhaps I am doing it all wrong, there is such a hard learning curve to this.
Lynnette Hall
Hi, I’m new to all of this. I’m not sure if my son has spd, but his therapist be saw over the summer seemed to think he does. I’m trying the best I can, but after hemorrhaging money on programs and evaluations for our son, hubby and I decided to take the school district approach. Our son qualified for and is currently enrolled in our PPCD program. He seems to be doing well, but there are days I feel so I’ll-equipped to deal with him at home. I’m trying to redirect my thinking that it’s a meltdown and not a tantrum, but there are days I feel he’s being stubborn bc he wants life on his terms. I’m hoping to find some insights from this site. Thank you for posting this.
Alysia
Hi and we’re so glad you’re here! There are definitely days that will feel harder than others, but we’re glad that you’re getting help through the school. Are you working with an OT as well (either at home or with the school?) They should help give you some good strategies for dealing with challenging home behaviors, and for determining what is a sensory meltdown and what is a developmentally appropriate tantrum. Our site has great information too – search for “sensory diet” and you’ll get some great ideas for home activities for your son to help him regulate his senses at home.
And know that you’re not alone in trying to figure this all out. Every day our site has posts from parents going through exactly what you are. Check back every day for a new story. We’re here for you.
Rachael
PHENOMENAL ARTICLE! We have been in the SPD world for 3 years…we were discharged from therapy and moved 3 hours away. Our little sensory seeker has had quite the time adjusting. It has made life rough for us. She is normally very very sweet and fun to be with (when she is not in a heightened alert) has reverted to screaming (needing the heavy lifting/pushing, and deep pressure)…poor little girl. We had a long talk with our therapist about what to do…so off we were to find parks so she could get her deep pressure.
Next thing I knew she kicked her big brother quite hard, and shoved him (two separate instances). Thank you SO MUCH for scenario #1 with Little Tommy…That was THIS WEEK! I totally dealt with it wrong and punished the action, rather than the root. As I was thinking about it, I realized that she probably didn’t realize how rough she was treating her brother.
I am LOVING all your pinterest posts! THANK YOU! I would love to see more deep pressure activities, as that is where we currently are.
Again, thank you for this article!!!!!!!
Shell
Hi – thanks for great article! My son was diagnosed with SPD today! And already we feel the light at the end of the tunnel. I am busy ready ‘The Out of Sync child’ but haven’t finished yet.
I want to ask – how do you calm them down – or ‘un’load once they have been overloaded? (ie today my boy is overloaded after being at the OT, new person, place and toys!! ) He is 3yrs old, wont sleep (although he really needs it!) and wont sit still, being rough with his sister, biting me and throwing stuff. How do I stop this? Or must I just work through it? Thanks
Sue Ann
I enjoyed your article on Sensory Seekers and Sensory Avoiders, a great tool for navigating through sensory patterns and explaining to parents!
Do you have the Registration & Sensitivity piece? Thanks
Sybil
As a mother of a child with SPD and as a School Psychologist, I appreciated your take on distinguishing between meltdown and tantrum. I totally agree, that the reason for the behavior is the key, not the behavior itself! Thanks for sharing!!