Let me begin with a bit of context. I have spent most of my life being very physically oriented – sports up through college and an extensive study of martial arts in Tae Kwon Do and Aikido. Therefore, not only do I not hide from conflict, I am willing to step right into its center in order to find ways to redirect it and diffuse it. And thus, I thought I was well prepared to raise a son, a very physically oriented son, a son with intense reactions, a son with Sensory Processing Disorder.
My son’s reactions to simple situations are often filled with frustration, anger and violence. When he gets overwhelmed, he hits, kicks and can scream like a wailing banshee.
Okay, you say – he’s a boy and most boys work through these reactions. However, I was completely befuddled by his extremes in two key aspects until our pre-school teacher started us down this path to discovering SPD.
First, my son often seeks physical input and he often doesn’t care if it is positive or negative. If he can’t get it through regular interaction, he is more than willing to push and push until he gets the input, which by this point is often negative.
This always confused me as a parent – isn’t my love enough? Why does he actively seek my anger at times? Nothing prepared me for that.
Second, many boys, and plenty of girls too, roughhouse with their friends. However, when I watch other kids play they seem able to understand an unspoken boundary of just how rough to allow the play to become.
Unfortunately, my son has never understood these unspoken lines.
If the games build in intensity he thrives in the midst of it, but where most kids are able to stop the momentum, recognizing the danger zone, he gets carried beyond acceptable behavior until he has a foot on his friend’s neck or dumping an entire bucket full of mud on another.
Again, his inability to sense limits and respect boundaries completely overwhelmed me. I felt like I could never leave him alone with a playmate and had to stand around like a hawk ready to step in at a moment’s notice. Not only did it often end in tears and embarrassment, I felt anxiety brewing like a bad pot of office coffee left on the burner all day.
There is the story of a person walking down the road and falling into a deep hole. Each day, they come back down the road and fall in again. This is how I felt interacting with my son for a long time, because no matter what I thought I’d learned from the day before to avoid the hole, here I was falling into the hole again – over and over again.
After 4 years of this cycle, I needed help.
There were days when simply tying his shoes the wrong way (based on his expert opinion) would throw the entire family over the deep end. Hugging him with love was not enough (and don’t even try kissing his head). Rationalizing through the problem was not enough. Threatening the big mean father was not enough.
I mean it was good practice in falling flat on my face and having to dust myself off, but I really dreaded spending time with my son because I knew at some point that hole was going to appear.
Today, only eight months into this process of discovery, I have deep gratitude for the people who have studied Sensory Processing Disorder and offered valuable insights into the whys and hows of this little known and even less understood diagnosis.
I have a long way to go in understanding how my son experiences the world – why his engine revs so high in excitement when he knows a friend is coming over that he starts hitting his mother, or why he is often falling to the ground in the middle of kicking around a soccer ball.
But what this path of diagnosis has offered me is a renewed gentleness with myself, my wife and my son’s quirky behaviors and extreme reactions. It reminds me to spin the conflict with an extra bit of creativity at the hard moments or be more curious about his approach to a situation. It has also taught me new tools, like brushing his body or squeezing his joints together – things I would never thought of on my own.
In a month, he begins an 8-10 week intensive with an Occupational Therapist who specializes in sensory integration, but my parenting has already turned a corner in the path and my vision is broadening.
These days, we still fall into the hole on more days that not. But my son and I are able to pick each other up out of that hole with more grace and love than before – and that makes all the difference.







Comments
Heather Finnegan
I hope you are able to see good results from the OT. I know just once a week visits (with the brushing and joint compressions) gave us a new son within a few months! I know what you mean about feeling inadequate, I taught preschool for 6 years before my son was born, and didn’t know how to deal with him and his tantrums. In the last 15 months I have learned so much!!!
Ilmarinen
Being at the edge of therapy, I struggle with expectations or desired results. As you state: “gave us a new son,” I am worried to expect too much. I know the little amount of work we’ve already done since the diagnosis has offered many positive changes. But, we are currently slipping backwards quite a bit too, step forward, two steps back. If my expectations reach farther then his progress with the summer OT focus, will next fall be even harder? I guess different is all I can really expect… and keep my own practice alive in loving him with my entire heart.
Kasondra
Thank you for this post. It was incredibly heartwarming!
I’m new to the whole SPD thing, so I need posts like this one!
Laura
I have had to be that “Hawk Mother” with my boy, and it’s hard to be the calm he needs at those times. I am so thankful for learning about SPD and all our OTs have taught us. Little things like wheel barrels for both joint compression AND heavy work amaze me at how simple they are, and how well they work. Remembering how far we’ve come is what helps me when I feel the panic or the anxiety closing in. I also find comfort in knowing that I am not alone in worrying that today might be a day where putting shoes on becomes an impossible task, or some unhidden, unforseen, seemingly small thing becomes a major crisis. It helps to know that my son and I are not alone. I hope that you find great success in your OT and look forward to hearing more about your journey.
Ilmarinen
There are so many things that help and that is what was so great about getting diagnosis – a place to start and some signposts along the way. But remembering to use the tools at the moment before the blow out is hard at times. I wish there was some silver bullet we’ll find, but it is a good reminder that we simply keep refining our support and hope they/he gain more skills to help support himself. He will probably still have blowouts and I have to be prepared to keep my heart big and love him through the struggles and trimuphs.
Brooke Shumaker
Thanks for your post. I can relate. You are a great parent. I hope therapy has given you new tools that you will share another time.