I thought in honor of Father’s Day, I would give all of the special needs fathers our there a gift. I am giving their wives some advice they could NEVER get away with saying themselves – a dash of tough love.
Subtitle: “It Isn’t Your Husband’s Fault”
I am not in your average-run-of-the-mill marriage. My husband and I are raising children with special needs, developmental delays, complex neurological conditions, mental illness and learning disabilities. And that puts a different kind of pressure on our marriage.
This is the kind of pressure people experience that are dealing with chronic illness, unemployment or long term financial issues – only worse. This kind of pressure is centered on helping our children and that means the stress is ever-present for both of us. Which sets the stage for problems.
Often families go into full-speed-ahead mode right after diagnosis. Especially moms. We become consumed with learning everything we can about our child’s challenges: Spending hours researching, going to forums, blogs, support groups, calling doctors, and hundreds (if not thousands) of dollars going to therapists, psychologists, behavior specialists, and even MORE money signing up for social skills classes, and buying therapy equipment so we can turn our home into a therapeutic oasis for our child. We spend everything we have each day pushing the envelope to find ways to help our child. Because we are the MOM and that is what we DO.
But what often happens during the never-to-be-quenched-thirst-for-knowledge-mission is a polarization between husband and wife. You cop an “I know the answers” attitude that quickly leaves your husband to play the role of “guy who doesn’t know the answers”. And about a year or so down the road, you turn around and realize that YOU have done ALL of the work. And you get angry. Frustrated. Annoyed. Pissed off that your husband doesn’t understand your child or appreciate all that you do. Sound familiar?
Yet, as hard as it is to believe, it isn’t your husband’s fault. Not the answer you were hoping for?
A constantly stressed out you who has been on hyper-drive for your child for the last year (or more), and didn’t take any time for yourself, never mind your marriage, is now exhausted, frustrated and tired of being a martyr. But your husband didn’t create this.
I’ll agree that he may have sat by and watched it happen, sure, but let’s be honest, would you have listened if he told you to slow down? Of course not.
We all go through this (including me). But the trick is making it to the end and still being married.
Which is why we as Moms have to mindfully choose to take care of all parts of our life – not just hyper focus on our child – but nurture our own needs, including being present in our marriage. We have to choose to talk to our husband about things other than the kids, their challenges, or the latest special-needs-book we have just read. We have to choose to ask questions, and listen to our husband’s answers (even if he just talks about work, or football, or cell phones). We have to make time to be alone with our husband, even if it means hiring a babysitter, or asking a family member for help (which I know can be hard). Both you and your husband have to actively choose to be a couple.
I know some of you think this is just ‘crazy-talk’ and that finding time for yourself and your marriage is just out of the realm of possible, but like the flight attendants remind you every time you get on a plane, “Put your oxygen mask on first, then help your child”, you have to take care of yourself first.
Plus, your husband misses you. Reconnect with your hubby and remind him of the girl he married — the younger, less stressed, less controlling, less “OMG DON’T DO THAT WITH THE KIDS!” version of you — remember her?
I know your husband does.
Happy Father’s Day!







Comments
Y'vonne
Wonderful article and so appreciated Harley…((hugs)) thank for writing this.
dawn
perfect timing… thank you!
CircleTimeMommy
You are so right!
nat
..”Reconnect with your hubby and remind him of the girl he married..”
goodness…. I don’t even remember that girl…
Laurie Wallin
Bingo, girl! Such a great post. It’s really a big deal how we get back to marriage being the primary relationship in the family instead of it being between mom and special needs child. I love how you tackled it here. May I quote you and this post in my book? I’m writing a chapter on how forgiveness gives us our marriage (and other parts of our lives as special needs parents) back. I’d love to include your insights!
Hartley Steiner
You are welcome to use my writing Laurie – thanks for asking!
Michelle
This post is SO on the mark for me. My husband deployed to Afghanistan 7 DAYS after my older son’s PDD-NOS diagnosis. He missed the following 7-8 months and then needed reintegration time. As soon as he got home, we moved 4,000 miles and I had to re-do all the hard work I had just done. In the last year since that happened, he has been out of town almost 4 months.
There are alot of reasons for the disparity in knowledge, but it is still a huge stressor for us.
Nicole Beurkens
This is a great article on a very important topic! As a clinician, this is often a discussion I have with parents…and, yes, it is hard for most moms to hear. Thanks for sharing from your personal experience!
Nicole
Julie
Dead on! Spot on! OMG I feel like you’ve been living in my house! I will be sending a link to my wonderful husband (who does his best to keep up with me and my research, message boards, blogs, etc.) to let him know that I’m not the only crazy one who does this and to also let him know that he’s a fantastic Dad and husband.