I am new here. It is only in the last month that I was introduced to this blogging network. For two years I have been blogging about our SPD experiences in hopes that spreading the word might further our cause. Most days I feel like I blog in vain but I blog nonetheless!
SPD and “sensory issues” in general were something foreign to me just two short years ago. I struggled through IVF to get pregnant with my twins. During my rough pregnancy I found out that one of our babies had structural abnormalities in her brain. She survived the pregnancy despite the doctors’ grim prognosis and shortly after birth she began PT to help her chances of being able to walk some day. It didn’t take our PT very long to start bringing up the issue of OT.
I remember being annoyed and thinking “of course these therapists just want to drum up more business for themselves” and “would it be so hard to just have ONE issue to be dealing with”. I could not have been more wrong. It became very evident that BOTH of our twins were “sensory kids”. One twin crashed and bashed and smooshed and touched and experimented. Our other twin avoided EVERYTHING. Every smell. Every sound. Every bright light. Every texture and taste.
As parents we just couldn’t win. We gave in and allowed an OT to begin working with our girls. She sent us to our pediatrician and we were informed that both of our children had SPD. We spent the next couple of months in a daze reading the literature, working with our OT and most importantly getting our minds around the fact that the future we had envisioned was probably not going to be the case.
Was is wrong that we grieved like we had lost a child? Was it wrong that I wanted to scream at my own children every time they smooshed or avoided? Do we tell her NOT to flap or just let her do it? Do we let her jump on the bed if it means the tantrums will be 10 minutes instead of 30? We were downright perplexed.
Thankfully two years later we are slightly more informed. We can now find ways to meet both of our children’s need simultaneously. It isn’t easy but we are learning that with a little flexibility anything is possible.