If your life is like mine, it’s all about juggling schedules – therapies, appointments, FUN time with the kids, family, and any other activities with which we’re involved. Our calendar is full. Yours too, right? So why am I excited for another appointment?
My name is Becky. My husband & I have 3 kids who are 11, 7, and 4 (almost 5, if you ask her!). Our 7-year old has been “off” since he was little and I’ve been trying to explain that to medical personnel. You’ve done that too, haven’t you? My first concerns began when he was about 16 months old.
To sum up a long process: He’s been evaluated twice and has been found to have speech issues, as well as sensory issues. The therapies we receive for those go a long way to helping him and I’m very grateful for that! The last round of evaluations was a full educational evaluation – how do his issues interfere with his ability to learn? The psychologist gave us some very useful information, which I already knew based on my own background in special education. He told us that our son meets all the criteria for Asperger’s syndrome. He seemed sad to have to tell us that, but almost relieved when I replied that we’ve been trying to tell people that our son is “unique” for a number of years.
So, after many meetings, evaluations, doctor visits, and therapies, we’ve finally made it to the “next round” and have been scheduled to see a developmental pediatrician who should be able to clarify all this for us. This is one appointment that I do not mind scheduling! I really want to find out if there’s more at play than just the sensory issues. All evaluations seem to indicate that there’s more going on inside of him.
What do I hope for in terms of a diagnosis? Well, parents don’t really WANT something to be “wrong” with their child. However, when you can see that things are different for your son or daughter, you really want to find out all you can, to be able to help them as much as you can. You become almost an expert in the particular situations that affect your family. That’s where we fall – we certainly don’t WANT there to be something to diagnose, but it seems there’s no avoiding it. As we review evaluations and research our guy’s issues, we realize we need to take this next step for him. We could choose to cancel this appointment, and continue on our merry way, but that wouldn’t help us meet our son’s needs in the most efficient manner.
We see the developmental pediatrician at the end of August. I hope to post an update sometime after that, to let you know what we’ve learned. In the meantime, we continue in our own little world of schedules and therapies and enjoying summer!