To celebrate SPD Awareness Month this October, here are a few things that I’m now aware of, thanks to my children and their sensory issues.
My entire education was a complete waste of time. Because if the teachers taught me that there were only five senses, who knows what other lies they slipped in there?
A mess is to me is tactile heaven to my girl. Sometimes the carpet just has to be a casualty of war in the battle of the senses. And be assured, it is a battle- I have the scars to prove it.
The bed has a different bounce to the trampoline and the bouncy castle, and that is why the kids just won’t stop bouncing on it. Ever.
A fistful of my hair is the source of all comfort. It can soothe and solace like no other material on Earth. A solitary stray hair on his hand, however, will send Cubby straight to a meltdown, even from the same source. Even if it worked its way loose by his grabbing fistfuls for comfort. I may take to wearing a shower cap during daylight hours, I’m sure I could work that look.
There are times that raising children with differences makes you feel terribly lonely. To that, I say: get on Twitter. There are more of us out there than you can shake a pop-tube at. With so many of us, there is no need for anyone to ever feel alone.
I speak an entirely different language these days. Sometimes I’m fluent, but most of the time I’m gesturing wildly and gibbering nonsense. Nobody seems to mind.
The reason I don’t like being hugged by strangers is not because “I’m English”, though voicing that together with an outstretched hand wards off the huggy bears.
Cereal is okay, and yoghurt is okay. Cereal and yoghurt together is really, really NOT OKAY.
Being able to button up their clothes or tie their shoelaces does not make your kids better than mine. But you bet I’m going to brag about it the day they can do it too!
Blowing your nose is not an instinctive action. Playing with what comes out of the nose kind of is.
Because I don’t punish sensory-driven behavior, I’m often taken for a permissive parent. Anyone who wants to try their hand at disciplining The Determinators is more than welcome. Just give me a whimper when you’re done exhausting yourself, myah?
Those same ears that can’t detect me calling her name, are the very same ones tortured by any kind of mechanical device, even at very low volume. On the same note, just because you’ve worked at tolerating the vacuum cleaner to the point where she can operate it herself, doesn’t mean you won’t be back at square one if you get a new one. A messy home is a clean conscience, or so I tell myself.
I have parent friends, and I have SPD parent friends. And they get completely different responses when they ask how we’re doing. Yet, I tell the truth to everyone.
There are some days when you can spin, climb, and hang upside down all you want, and it will never be enough. There are also days when slightly tipping to the side will be overwhelming. There is no way to detect which of these days it is going to be until you’re living it. Finding the balance is as tough for us as it is our kids. I prescribe chocolate and wine in large quantities until the world seems to right itself again.
Waiting is really, really, really hard. Even for Especially for parents.
I celebrate the milestones like every other mother. But I have different ones, like “first time she smelled something” or “walked around her baby brother instead of straight over him.”
My children don’t know what an object is until they’ve put it in their mouths. Even if they do know what it is, they’d better keep mouthing it to make sure it doesn’t change. Or in the hope that it will change. Either way, they are going to reject any product that was actually intended for oral motor purposes.
The kids will beg and plead to go to the park, and then for you to push them on the swings for upwards of 30 minutes. When you finally buy an indoor swing, they will only want to use it if the other sibling has expressed an interest. At this point I hand them each a pillow to fight with and consider it part of the sensory diet.
I spend so much time living and breathing SPD, and seeing it in everyone and everything. On the odd occasion I encounter a person without quirks, I’m a little freaked out, and want to prod them with a large stick to see if they’re actually breathing.
Expensive make-up makes far prettier wall murals than washable paint.
I talk about Sheldon from The Big Bang Theory as though he is one of the family. He is one of the family!
There are people on this planet who don’t have a special interest. They’re actually kind of boring, our way is better.
Fine motor delays are somehow miraculously overcome in the presence of child-proof medicines. For that matter, there are no motor-planning issues involved when a certain someone moves a chair to a different room to climb up to out-of-reach cupboards. With locks. I’m on first name terms with the Poison Control ladies.
The more I crave sleep, the more she avoids it. And I swear she is the sensory craver, not the avoider.
That raindrop running down the window really is the most magical and absorbing thing in the world, and well worth staring at for a considerable amount of time. Shame my kid only notices it when I’m running late.
Finally, I’m aware that while You Can’t Always Get What You Want, With A Little Help From My Friends- We Can Work It Out. I’d have more up-to-date music references, but only Pudding-sanctioned music is tolerated in our house.







Comments
Jane
Right there with ya. Who knew sock seams were anathema?
Spectrummy Mummy
Ooh, not just sock seams either. We had to make sure there was protection from all the seams in my son’s Halloween costume- they drive him crazy!
Alysia
I love this. And yes, the more I crave sleep the more my kids avoid it. And I love the line about having separate friends but saying the truth to them both. so true.
Great post to round out sensory awareness month!
Spectrummy Mummy
Thank you, friend.
Ember
AMEN! It’s like you’re living in our house in your description of your children.
I never know what kind of a day it’s going to be around here with my boys either. Especially my oldest kiddo. While my youngest is pretty much a constant seeker with no aversions to oral texture or smells, my oldest takes issue with so many textured foods it’s overwhelming and when you throw in the smells, well it’s just easier to say what he will eat!
My youngest, has some auditory processing issues as well so you can stand next to him and call his name a hundred times to no avial but, turn on the vacuum cleaner and it’s the end of the world! My oldest, who is hearing impaired and even wears hearing aids, will often complain that things are too loud and cover his ears – WITHOUT his aids on!
At nearly 7 yrs old, my oldest has swallowed more objects than the 3yr old has! Well, the 3yr old has never swallowed a thing but, DW has lost more Legos, etc. from his constant need to mouth everything he comes into contact with as well.
And the sleep thing……I got up at 6ish this morning and my boys are out cold. Yesterday when I tried desperately to sleep in, they were up at 6!
Ohhh, I could go on about how much I love, love, love your post but, I’ll just say thank you for writing it. It’s always nice to know that someone else out there “gets it”!
Spectrummy Mummy
Ugh, it is so hard when they are at opposite ends of the sensory spectrum- I’ve been there. My girl shouting and singing while my boy can’t handle the noise. It must be even more difficult with other special needs in the mix. Good luck to you!
lauren
Your post rings so many bells, thank you for writing this, nice to know other people go through this aswell. I also love your blog
Spectrummy Mummy
Thank you Lauren.
Forgotten
Are you sure you aren’t peeking in my windows? This is on the dot with how life in my house is on a daily basis.
And the line about Twitter is so true. Twitter has been a Godsend in my world.
I loved this! Thanks for sharing it.
Spectrummy Mummy
Promise I’m not peeking in- if I were, Pudding would have found a way to get inside and wreak havoc in there.
Thank you.
Beth C.
I feel so much like you’re talking about my life except for the being English part. I never know what to expect day to day, sometimes hour to hour. I tell myself that it just keeps things interesting. =P
Spectrummy Mummy
Oh yes, never a dull moment!
Manon
What a great post…although my son is a little older now 10 and things are getting easier I still live on the edge of a breakdown/meltdown that happens for no apparent reason! I am hear to say things do get better either because I learned to manage it better and the maturity factor helps too! But I have been there many…many & many times ladies! And yes if wish Twitter would of been around when my son was younger…having support makes a huge difference! Manon
Spectrummy Mummy
Thank you, Manon.
Hartley Steiner
As always, insightful and hysterical! I’m sharing on FB!
Happy SPD Awareness Month!
Hartley
Spectrummy Mummy
Thank you Hartley, and thank you for sharing.
Karen V.
Amen Sister!! You said it all so well.
Spectrummy Mummy
selina
wow that was wonderful! like opening a great present on christmas-thank you!
Spectrummy Mummy
Ooh, thanks- your comment was just the same!
Cheairs
Oh, I love this post!!! All I can say is that I get it…I totally and completely get it!
Spectrummy Mummy
Thanks, Cheairs.
Mary
Yep. Same here. Ditto, and thanks for being a support system.
Spectrummy Mummy
You are most welcome, Mary- glad to have you here.
Bek
Thanks for the laughs and for saying it all so well!