My DD has Sensory Processing Disorder. She was diagnosed when she was 2.5. She was a preemie and had some developmental delays and began PT and DT. Both therapists at different times started noticing different things and asking me questions. They both submitted a request for an assessment by an OT at the same time, having never discussed this between each other. Caitlynn would wake up from her nap extremely upset and crying, wanting to be held yet screaming at the slightest touch. I didn’t know what to do.
After it was confirmed she had SPD she started OT. I had never even heard of this before, so I started doing research, getting as much information as possible, questioning the poor OT non-stop. The things she was doing and we were starting to do was working, we started having more good days and less screaming and crying. She was not cured, but we knew how to handle things. We learned she is a sensory seeker. She always loves picking up heavy items, jumping into the furniture, running, hugging, sitting next (nearly on top) of one of us. Heavy blankets, weighted ball, weighted vest, they all help.
Let’s fast forward to today, age 5 (turning 6 end of October) and in 1st grade. Let me just say I miss her being in Kindergarten because we never had any real problems. But 1st grade is being a different story all together. First we go to a private school with a class of 4 students (including her) that she was also in Kindergarten with. The 1st grade teacher is the only new addition. And thank God for her, she has been trying to apply all the tools and information I have given her. But things seem to be getting worse and not better.
We have a very real fear of the bathroom. This has always been, this is not new. So someone has to go with her to the bathroom. We don’t like stairs, we will go up and down them, just now by ourselves. And the school always makes sure that she has a buddy when she goes. Since the 2nd week of school we have been having “accidents” of the poopy kind. As of the last 2 weeks we having been peeing ourselves. I just don’t understand why she is suddenly rebelling against the bathroom. We have been dealing with the poop issue for some time and I have no idea if this is a sensory issue or not, but we are trying to work through it. My heart breaks because I’m at a loss of how to help her.
We are also getting more defiant and aggressive, vocal, saying we hate school, the teacher, a student etc. We hit and kick the walls, we have total meltdowns. Her teacher is being patient but getting frustrated and so am I. We had to stop OT when she turned 3 because of the program it was through but she was doing so well then the OT did not see any problems with stopping as long as we continued our “exercises” at home, which we have.
I know first grade is new to her, there is less time to get her input. I just got in the mail the desk-er-ciser to put on her school chair and I pray that helps. I’m just at my wits end. Since it’s a private school there is not an IEP but that does not mean they are not trying to work with her. The teacher sends papers home that have caused a meltdown in class for her to work on with me in the hopes it won’t be so stressful on her. However when it comes to writing a specific story or a sentance we almost have instant meltdown.
I feel like I’m doing something wrong, we do our exercises, we do our therapy, I give tons of information to the teacher and principal to inform them further. I am in tears by the time I leave the school and hear about the sensory day she has had that has lasted all day. Screaming at her teacher, crying, hitting and kicking walls, not wanting to even be at a place she has loved to this point.
I know we can get through this. I’m just trying to figure out what I am missing. If you ask her what is going on she says she does not know. And truthfully she probably doesn’t know. I just don’t know how to help her becuase I don’t know what is bringing this on. Some days we have a great day, no problems, and then days like today we have issues all day. I’m just in tears over it.
I guess I just needed to vent. There are no support groups that I can find in my area and I don’t have the time or energy at the end of a day to start one. I’m just….at a loss.