After having had our student teacher conference the other week, my little man is still having a tough time going to school. Some days are tougher than others; while once in a while, he actually goes off with only a whimper of, “I don’t want to go to school,” as he climbs into my car.
So, I wonder, what’s next? Then the idea strikes: I need to create a brief instruction manual for my son’s teacher. Little Man 101. It will explain him as much as I can, give specific directions as far as how to motivate him, and also give specifics as to what to not do (or he will shut down and turn all his anger and frustration inward). So, here goes.
Little Man 101
Dear Teacher,
I wanted to write this primer on my son because there were a few things that we discussed during the parent teacher conferences, that let me know that as much as you are figuring him out, there are still some gaps in your knowledge of him: why he does some things that he does, and ways to handle and motivate him.
First of all, I want you to know that I appreciate very much your teaching him. I appreciate what hard work it is to have to take on 26 developing little bodies with each of their personalities and different ways of learning.
Background
My Little Man is very sensitive (empathetic, and compassionate). What I mean by that, is his emotional radar is always on high power. He picks up on what others around him are feeling. He is a built-in lie detector. A fellow student (or faculty) can say one thing, but mean something else, and he’ll get the feeling more than the words. Because of this, getting a break from the classroom every few hours is a necessity. It can be tiring and even overwhelming some days.
Little Man, as you know, has Sensory Processing Disorder. What this means in the classroom, is that his brain, when analogized to an engine, doesn’t always run up to speed. When one or more of his spark plugs aren’t sparking, he becomes dis-regulated. Things that help his regulation [ability to process his world and think well] are things that give him proprioceptive and vestibular input.
What is proprioception? It is one of our 7 senses that most people don’t know about. Proprioceptive receptors are located in the joints and ligaments, allowing for motor control and posture. The proprioceptive system tells the brain where the body is in relation to other objects and how to move. Those who are hyposensitive crave input; they love jumping, bumping and crashing activities, as well as deep pressure such as that provided by tight bear hugs.
That is why Little Man sits on a therapy ball; so he can move and bounce. When he is bouncing and moving a lot, it’s because he is needing more input in order to be able to think. So, instead of admonishing him to not bounce so much, send him on an errand to the office, or to the boy’s room and tell him to get a drink of water from the bubbler. Just getting out of the classroom and the simple act of walking, will help him greatly. If you can’t give him a break at that moment, let him know you’ll give him one as soon as you can- and that will let him know that relief is on the way.
What is vestibular? It is another of our 7 senses that most people don’t know about. The vestibular receptors, located in the inner ear; tell the brain where the body is in space by providing the information related to movement and head position. These are key elements of balance and coordination, among other things. Those with hyposensitivity are in constant motion; crave fast, spinning and/or intense movement, and love being tossed in the air and jumping on furniture and trampolines.
Our home is like a sensory gym for Little Man. He spins using our swing or an office chair. He lives to jump on trampolines, uses his hop ball and constantly jumps on our furniture. When he’s at school, the only time he gets vestibular input is at recess. Recess also gives him great proprioceptive input. THIS is why it is so very important for him to get as much recess as possible.
His sense of touch is hypersensitive- so having kids brushing or bumping up against him is a huge irritant. That is why sitting an area of low traffic is best for him: and I thank you for where you’ve got his desk. Every day when he gets home from school, the first thing he does is take off his shoes, socks, and pants. Every… single… day.
Having the school bell right outside the classroom door has added an extra challenge for him this year. With his hearing issues, going out the door just as the bell rings, is very painful to his ears, and sets up a response in him where every time he goes out the classroom door, he’s afraid the bell will ring. [When he was a very little guy, the security panels that stand at the entrance to every store door, became a nightmare for him. After being surprised by a store alarm, he wouldn't walk into stores; I would have to carry him as he shivered in fear of the alarm going off. Even today, he hesitates going into stores, having to run past the security panels, in fear of the potential of the alarm sounding.]
When your senses perceive the world around you as something that is scary, and untrustworthy, it is very common to have anxiety. Little Man has a lot of anxiety at home regarding school. He fears that he’ll do something wrong and get in trouble and lose recess. He fears your disapproval. He fears being different from other kids, and they’ll laugh at him. He fears being embarrassed. He fears losing his therapy ball to sit on, because there are times when he really needs to bounce a lot.
How to Help & What Does Not Help
How do you recognize that his motor is running slow and he is heading toward disregulation? He is bored, can’t concentrate, is looking out the window and is daydreaming. If you catch him in this state, please don’t bring the class’ attention to him. When you know he has not been paying attention, don’t ask him a question about what you’ve just been teaching, knowing that he won’t know the answer (a common tactic when I was in school). This is humiliating. Just a firm squeeze of the shoulder or a tap on his desk will bring him back. Be aware that when he’s like this, it’s an indicator that his body and brain are not well-regulated. What he physically needs is a free pass to take a walk and let his brain get regulated.
Positive verbal feedback from you goes a long way with this child. It boosts his fragile ego quite a bit. [School makes him feel like a dummy- his words.]
Just be aware that if you have to admonish or discipline the class as a whole, Little Man will take it personally and will take it to heart.
And as previously mentioned, if Little Man is bouncing on his therapy ball a bit, it’s because he physically needs to at that moment (or to do some other activity to help him regulate). You would never deny a diabetic child their insulin if they needed it. I see this as a very similar situation.
In Conclusion
A child with Sensory Processing Disorder spends much more energy and effort just trying to keep it together throughout a school day. Having to sit, stay focused, write, pay attention with visual and auditory systems that aren‘t necessarily well-regulated, and actually learn and retain information is more difficult than for the average child. And most of this effort to appear “normal” will go unnoticed by the untrained and uneducated eye.
As the parent of such a child, I have to walk the fine line between pushing my child to do his work, and knowing when he’s dis-regulated and can‘t do any more. I have had to learn to recognize his behavior so I know if he’s being willful or if he’s overloaded and overwhelmed (for the uneducated, they can look the same). Since he was 2, Little Man has had speech therapy, occupational therapy, physical therapy, vision therapy and neurotherapy. He has come worlds from where he was as a toddler, and we will likely need to re-visit (private) physical therapy and vision therapy, because I see areas where he still needs more help.
Thank you for taking the time and effort that you give my son in school. I appreciate your kind, compassionate and respectful support of him.







Comments
Kiley
My Gosh, so incredibly well written, and so similar to my own 8yr old with SPD. Thank so much. Will definately share.
Susan S.
Thank you! And do share. Copy this and change it to suit your child.
Brenda Plaugher
Written so well!! I remember in the beginning it’s so difficult to articulate. This will certainly help parents who are just beginning to deal with it.
Susan S.
Thank you. It’s actually taken me almost 7 years to get to this point. I can see how a teacher wouldn’t be able to figure this out on her own.
Lorrie eubanks
Wow, i’m so glad I took the time to read this. You have described my 10 yr old to a t.. He has never been diagnosed. I plan on bringing this to my peid and learn what to do next. Thank you.
Susan S.
Lorrie, I would think your next step would be a referral to an Occupational Therapist. They are the ones to handle sensory issues.
Julie Pennell
Bravo, Mommy!!!! Little man is soooo lucky to have you!
I also want to send a glimmer of hope out to all of you who are reading – my “little man” was in a vey similar place 10 years ago. It was by no means a quick or easy path, but I am happy to report that he is now one of the most level-headed, well regulated young men I know. He was just accepted into his first choice for college (yesterday – hooray!!!)and already has a job lined up for this summer.
My point is, what you are doing right now MATTERS! Keep fighting the good fight and know that, even when you feel alone, you are surrounded by others here who understand you.
Dawn
Congrats Julie… as a mom of a 5 YO that warms my heart to hear that all the struggles we are going on will pay off. I often wonder what the future may look like.
Julie Pennell
Dawn – I NEVER would have imagined that we would be where we are today. Believe in yourself and your children and you’ll be amazed at what can happen!
Susan S.
Congratulations Julie! That is definitely encouraging to hear. Little Man is in 3rd grade this year, and has had a lot of changes. With increased expectations of him in the classroom, it’s been particularly challenging.
I don’t know that he’s ever going to like school, but one day, hopefully, it won’t be as tough to get out the door.
Dawn
So well written… it hits close to home. When our son was a lil guy, we always called him wiggle worm… little did we know.
The other thing that has really worked this year is our son’s teacher does classroom activities for Sensory input with the entire. The classes fav is trying to make the classroom bigger (aka wall pushes).
Susan S.
I wish my son had your son’s teacher. My son’s teacher this year is what I refer to as old fashioned. She’s been teacher for 25 years and uses tactics like embarrassment and threats to motivate the students. The way she does this may not seem out of line or harsh to her, but with such a sensitive kid, you may as well be physically slapping him. To him, it’s much the same. He’s the kind of kid that will do anything to please his teacher; all they have to do is go over the directions a few more times with him (because he seems to have trouble with directions).
Heather Finnegan
I’m sorry but I dread those teachers for my son. I was a teacher for 6 years before becoming his mommy. Most of these things are not that hard to incorporate!
I pray that your little man can get through this year and learn some new coping skills as one will always encounter those kinds of teachers here and there.
Beth C.
Absolutely incredible letter to a teacher. This is probably the best insight into what a child with SPD deals with in school that I have ever read!
My son (5) is in an integrated preschool program that is wonderful at dealing with his needs, but I’m worried about when he starts kindergarten next year. Can I use your letter as an outline to write something similar for T’s new kindergarten teacher??
Susan S.
Beth- thank you so much. Yes, of course. Please take this letter and make it your own to help your child. I wish you luck.
Our road has not been a smooth one since Little Man finished a developmental preschool 4 years ago. But it doesn’t keep me from trying and trying and trying.
Katherine Collmer
Such a nice, thoughtful gesture for both your son and his teacher. I will definitely share this with my readers. Thank you for your blogs and for opening your heart up to the rest of us.
Susan S.
Thank you Katherine! I checked out your website and love your handwriting tip of the week. I so wish you had worked with Little Man when he was in first grade and struggled so much with handwriting. (It’s still no picnic for him, in 3rd grade).
[BTW- the sailboat photo looks like Cape Cod Canal? I went to MMA- and see that you're in Sandwich.]
wendy
I really enjoyed your letter! I too wrote a letter to my child’s teacher. It has helped her greatly and she uses to inform substitutes as my son doesn’t do well with change and a sub “not getting it” is enough to cause a meltdown. I created a type of get-to-know me folder. On the outside it has my phone numbers and e-mail. In the left inside pocket is my letter to the teacher and some important information about Sensory Dysfunction Disorder written for teachers. In the middle, I have his IEP and any therapy progress reports, and on the right side is information on Sensory exercises and ideas that work for him. I also include a picture of him which is helpful because I give this folder to each new teacher at our IEP update meeting right before school starts. Hope this idea helps! The teacher’s have loved it so far!
Susan S.
Thanks for your response and input Wendy. I love your folder. We’re still working on creating accomodations for Little Man for this year, but I think something like your folder is great! I may make one for his teacher next year.
Peg
Stopping by from Aimee Writes. I am so glad I did. Thanks for taking the time to educate us all on issues the rest of us know little about.
Susan S.
Peg, thanks for stopping by. More and more children like my son are coming into this world, and our school systems need to learn how to best serve them.