Never Lose Hope

Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better.

Dear Parent Educator,

I met you last year at a conference. This conference was held by a local organization (where you are an officer and co-founder [I believe]) who strives to empower parents and teachers to help children on the autism spectrum achieve the goal of graduating from a diploma bound program. I volunteered for this conference as a note-taker in the preschool small group. I listened to the representatives from our schools, asked some questions, and passed along my notes to your organization for you to put together the minutes from this break-out session. After the session was over, you and I had a short conversation.

During that conversation, I told you that I had twins, both with a diagnosis of autism. I told you the two programs that they were currently enrolled. And I told you that I was hopeful for them to enter a diploma bound program when they completed preschool because they are so smart and I didn’t want to see their autism diagnosis hold them back from reaching their full potential. And you politely told me to “WAKE UP!”. Given the programs that they were enrolled, they would never end up in a diploma bound program.

You had never met Ballerina or Music Man. You just decided that, given they were in more intensive programs in preschool, there was no hope for their future. You didn’t ask me if they were verbal. You didn’t ask me if they knew their letters or numbers. You didn’t ask me ANYTHING. You just made an assumption.

Well, next year they are going into kindergarten. The representative from our school cluster recommended the “Home School Model” for my daughter (mainstreamed into a typical classroom) and the Early Learning Center for my son (allowing for him to be mainstreamed throughout his elementary school years). That way, by the time they enter middle school they will be able to function in a typical classroom setting and will be well on their way to receiving their high school diploma, the exact population that your organization is designed to help.

As a family who went through our county’s Early Intervention Program (just not the office you are associated with), we worked with a Parent Educator. I told this person that I was hoping that they would be ready for a typical classroom setting in elementary school. She didn’t tell me that that was likely to happen. But she also didn’t dash my hopes. You work with VERY young children (up to age 3). You SHOULD know that at that age, things often change and can change rapidly. My children are not the only ones from their respective programs to graduate to a diploma-bound kindergarten placement.

You should be ashamed of yourself. Not only did you not know my children, but you didn’t know ME. How were you to know that, after someone said that to me, that I wouldn’t just roll over and allow my hopes and dreams for my children to die on the spot. That conversation has been haunting me for a year. Now I have achieved success, I throw it back to you. Let me serve as a reminder that not everything autism related is as it seems. The IEP and 504 Process is designed to help each individual student achieve as much as they possibly can. At 4 years old, you can’t just assume that my children (who you never met) couldn’t achieve success in an academic program because of their preschool placements. I hope that the parents who come to you for advice receive better than I did that night.

Sincerely,
Someone Who Proved You Wrong

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About DRS_Are_Best

My name is Ilene and I'm a happily married stay-at-home-mom to 3 wonderful children. My eldest is a typically developing 7 year old. I also have a set of 6 year old girl/boy twins, both diagnosed with Classic Autism and ADHD. My son also has issues with Anxiety and my daughter was diagnosed with POTS about a year ago. Life is not what I imagined it would be at this stage, but it's still my life, and it's good. We have good days and we have bad days, just like everyone else. I started blogging (http://www.myfamilysexperiencewithautism.blogspot.com) to cope with things not progressing the ways that I wanted them to go. Sometimes I vent about problems. Sometimes I share in a glorious moment. Sometimes I try to educate others. It really depends on what I feel like saying when I sit down at the computer to "blog". But I do promise that everything I write is honest and heartfelt, even though I may contradict myself from time to time as I learn new things. I hope to share with others what we go through. And I hope you enjoy reading our stories.

    Comments

  • Spectrummy Mummy


    We had a teacher who told me my expectations were too high for my Aspie 3 year-old…I can’t imagine what she was telling the parents of non-verbal kids. We pulled her out of there (and actually into a more restrictive setting) as soon as we could. It amazes how some of our educators can have such little hope. If they don’t believe in the power of early intervention, they surely could make better career choices?

    • DRS_Are_Best


      Spectrummy Mummy, HERE HERE!!!!! My family (and so many others I know) are LIVING PROOF that Early Intervention works!!!!!!! People who don’t believe in that shouldn’t be in this line of work. What makes me so sad is that the same person who said this to me gives this kind of advice professionally.

      I’m so happy you found a different program for your child…..if nothing else to get away from the teacher with no faith or hope.

  • CircleTimeMommy


    Great post! I hope you actually sent that letter. It is unprofessional and innapropriate to make judgments like that without knowing the children involved. I’m so glad your children are achieving beyond those expectations…keep them high!

    • DRS_Are_Best


      CircleTimeMommy –

      Thank you. Actually, I didn’t. I wrote this directly on this site. I was debating whether I should post this on the Yahoo! Group that her organization has (I’m a member so I have the access to do so), but decided not to do that. But don’t get me wrong…..I’m tempted! ;)

      I just want parents to understand that no one knows what the future holds. Even if an authority figure tells them that their kids “CAN’T” do something, no one can say that with certainty. Parents need to trust their instincts because they know their kids better than almost anyone.

  • Melissa


    I’m so glad that you decided to write this post.

    As much of a kick in the teeth as it sometimes is to read reports, one line was always there in some form or another, “this report is not predictive of future development….”. And that is in itself a telling statement. As much may have expertise in their field, they can’t predict the future. Frankly, I find what that parent trainer did absolutely abhorrent and good for you for not giving up hope!

    • DRS_Are_Best


      Melissa, Thank You.

      You are right — what frustrated me most is this person said these things to me without knowing ANYTHING about my kids other than their diagnosis and the programs where they were placed. And she didn’t ask me any questions.

      There’s a saying/mneumonic…..”When you ASSUME, you make an ASS out of U and ME.” She definitely proved the truth of that statement during our conversation.

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