Today the facility where I planned to have my daughter’s 7th birthday called to let me know they accidentally gave away our time slot. Her party is still over a month away, so we just needed to pick another day or time. No biggie, right? When I hung up the phone, I burst into tears and proceeded to cry for almost 30 minutes. 30 minutes! OK, I admit, I am what you call a “crier.” Those commercials with teensy babies asleep in their mother’s arms or grown children going off to college usually always get me, and I avoid the evening news because I end up sobbing by the first commercial break. But this? Out of character even for an emotional goof like me.
Then it hit me. I felt like this party was something going my way, something easy and hassle-free. Something positive. I called and got the perfect day and time first try. This party was something I could control. Something that felt stable and unchanging. Sure, that’s a lot to put on a party’s shoulders, but I needed something. I just didn’t realize it until that moment. Life had grabbed me and tossed me on a roller coaster (and without my permission, how rude!) these last few weeks, and sometimes a little kitchen meltdown is what it takes to see that.
My 19-month-old son was diagnosed with SPD a few weeks ago. He has been working with an early intervention program on his delays for a few months and we are awaiting results of genetic testing, but this official diagnosis is fresh. And confusing. My head has been spinning as I read about SPD and make the connections. The more I learn, the easier and harder it seems to be.
Just to keep things interesting I suppose, life threw in another curve. It became very clear to me that my daughter has sensory issues as well (currently on a wait list). I feel terrible that I did not know and get her help as a toddler. It was not so obvious with her as it was for my son, and her issues are probably milder, but it all makes sense now. I try to be kind and remind myself that I had never heard of SPD, so how could I have known? Mother’s guilt is no match for that logic. My heart aches when I think about what she was going through, what my son is going through as he tries to grow up in this crazy sensational world. I am glad to have answers for the “quirky” behaviors and massive meltdowns, the relatives who said over and over “You just worry too much, he is fine.” Yet having an answer is just the beginning.
It might not be what I expected, and it will surely be challenging (Life apparently did not get the memo that parenting is a hard enough job already), but it will be OK. Take a deep breath and repeat: it will be OK. I am still coming to grips with all this, still learning so much and sorting it all out. I am ready to put in the time and effort that it will take to help my children be as successful and happy as possible, SPD or not. I am prepared to be strong and positive, to allow myself to grieve and cry, and to feel pain and joy. All this sounds well and good, until the next time I get a phone call with a time change and dissolve into tears. Truthfully, I can read and prepare and try my best, but all I really know is this: I love my two children fully and fiercely, just as they are.







Comments
caringforkailey
I remember that time in the beginning when we received a diagnosis of SPD for Kailey. We had never heard of it and it was very confusing to us. Educating ourselves was the most helpful. The stress was huge but once we received therapy and worked with her doctors it got easier. I want you to know that it does get easier. I say easier because you will get more educated and learn how to help you children. You sound like you have the right mind set. You are there for your children and will do what it takes to help them. That is HUGE!
Stay strong mommy! If you have to cry, cry. Its ok. I am not a cryer and there are many times that I wish I was. We all have different ways of dealing with the stress . Crying is a great stress relief and if it helps you get it out and keep moving, do it!
Sybil
I don’t think I cry enough. Instead I get angry and anxious and feel like I’m stuck in a world where no one understands. That’s why I love this site! It’s the only place I feel sane. Thanks for writing, for sharing your feelings!
Heather Finnegan
Jenny from the Block-I just realized who you were
I was about to write about a friend just like you, but then it clicked
I’m a little slow!
HUGE HUGS!!!!!!! I cried the whole way home from my oldest son’s first OT appointment. How could I not know? The answer was I didn’t and I can’t hold that against myself! All I can do is move on and do my best. I still have days that I fail, and I have days where I get it right.
Take it each day at a time! Learn what you can and when it becomes overwhelming, take a break. And call me anytime
Rae
You’re so right about the illogical mommy guilt. I just got test results with another piece of my son’s puzzle today and thought, “I should have known!” It is all overwhelming. I’m glad you’re here.
Jenny from the Block
Thanks so much ladies, I appreciate it! I am already in a different mind set than when I wrote that weeks ago. Some of it is simply time and accepting/coming to terms with all this, some of it is learning. MOST of my improved outlook, I think, is from finding this community. Reading about others with similar experiences has been a tremendous thing for me. I felt so alone and lost, and I don’t any more! I know there will be sad or bad days and I have a LONG way to go, but seriously, this has helped so much. Thank you!
Heather, lol.
You are not slow, just a busy mama and Jenny from the Block is not my normal name!
Sybil and Kaileys mom…yes crying can be good, but we all deal in different ways like you said. And too much crying can also be bad…just ask my husband! ha!
Rae…hugs. I am glad you found another piece of the puzzle. I hope that “should have” feeling goes away soon, I know how heavy it can be. Moms need to banish this from our vocab, but it is easier said than done.
Jenny from the Block
Also Heather, thank you for the hug and offer to call any time. I feel very grateful that someone I know and am friends with and lives near by understands all this! I need to get a picture up on the profile, that probably would have helped identify me as well. I still cannot figure that part out, though, working on it!