My name is Lynda and my son Ryan is 34 months old (2 1/2 or 2 3/4). He has had many obstacles in the past year alone and now he will be starting preschool at a private early childhood center since he didn’t qualify for assistance from my districts board of ed because of his birthday (he misses the cut off date by 3 days… don’t get me started). Well since last year he has been attending Occupational Therapy and Speech Therapy with Early Intervention which actually ends in a few weeks since he’s reaching his 3rd birthday. He also has Physical and Occupational Therapy at a local hospital that has a superb child development center. Unfortunately I can’t get him into Speech therapy there because there is a huge waiting list and priority goes to Autism and Down Syndrome patients.
Moving on… I’ve always noticed things about Ryan like not wanting his hands dirty especially during OT where he refuses to play with finger paint or playdoh etc. It took 4 months or approximately 12 sessions to get him to comfortably play with dry rice. His OT from Early intervention stated that she has always noticed he has issues with self regulation. I have also seen many checklists online but I’m seriously confused. Examining all the check lists I have seen many things that he does but there is also alot of things that he doesn’t do. For example, getting a haircut impossible unless I literally hold him down with my arms and legs (because he becomes incredibly strong) and screams with every snip of the scissors and don’t even ask about clippers, refuses to get hands dirty but when he eats he does so with his hands because he has trouble with utensils but immediately starts yelling for someone to clean his hands. But he loves to take baths so water is not an issue. He throws tantrums when I change his diaper but not because he doesn’t want me to but because he thinks he’s still dirty regardless how many times I wipe and show him he’s not dirty. He is not potty trained and that has been a mission in itself and although I have tried what was recommended (put underwear on him let him get wet or dirty and he won’t like it) that didn’t work either. He urinated on the floor 5 times and just says ohh mommy peepee… As far as cuddling or hugging goes, he was breastfed for 20 months so he loves to hug me and when he’s super upset tries to “feel me up” as my husband would say but its not easy for someone else to console him. He wants daddy when he’s upset with me for not understanding or if I’m not responding to him quick enough.
Because he has been through so much and I hate being the nagging mom i’m not sure if I should go to his regular pediatrician or should I just consult his OT at the private hospital since EI has already said he only has 5 sessions left and they wouldn’t be able to do anything cause he will be 3 years old, their cut off age. There are other things, with loud noises he covers his eyes only sometimes his ears. Movie theaters are impossible to visit not cause he wants to leave but he actually wants to stay but screams at any loud sound effects the whole time then screams when I try to leave. He recently had an EEG for suspected epilepsy similar to my daughter’s and just to get the stents on his head with cream was killing him. He gets itchy sometimes which he then asks for “crema” just to “stop the itching”. When he comes home he wants to strip down and be totally naked (except for his pull up cause I’ve told him if you want to be naked at home you have to be potty trained hoping that would work). He hates shoes and prefers to be barefoot with no socks and damn if i put socks on his feet where he can feel the stitching at his toes, that is another uproar… He prefers crocs with no socks. Usually I go through 4 pairs of shoes until he find one that he is comfortable in when I don’t let him wear crocs (he tends to trip alot when he has crocs on). He’s always saying boo boo with the shoes he doesn’t want even though they’re all the same size, they’re all sneakers and he’s worn them before.
I’m not sure if all this might suggest SPD… But I know I definitely need to start somewhere and I hope I will get more information here from fellow moms who have or are going through what I’m going through.
BTW apart from all of these issues, Ryan is on a Gluten Free Diet because of his many food allergies. He was also going through Growth issues and once I changed his diet he began to grow and gain weight. We suspect Celiacs Disease but he was too young to test and now to test him he would have to get back on wheat and then tested. I of course refuse to put him back on wheat since he’s doing so great on Gluten Free.
Thanks again, Lynda