Nervousness Never Fades

September 27, 2012 by in Eating Issues, SPD with 3 Comments

“Everyone had bologna around me at lunch today.” Spoken by our sensory, orally, and olfactory defensive 5.5 year old when she got home from school. I asked her how she handled it. “I plugged my nose.” While I’m proud of her for using her coping skills to ward off the offensive, I’m also a teeny bit worried that she’s not advocating for herself the way she should. I reminded her that she is allowed to ask one of the lunch ladies to move if she can’t handle the smell/appearance of certain foods. I’m not exactly sure how well it sunk in.

I have to admit I’m a little bit nervous. B’s feeding therapy that we’ve been a part of for the last 2.5 years will be run from home, by me, in about a month. B’s fantastic therapist is going on maternity leave from October through January. While therapy was only once a week and now only every other week, she still pushes herself further with her therapist than she does with me.

I’m a teacher. Teaching and instructing is part of who I am. I should be able to do this, right? I don’t know why, but this type of program intimidates me. Maybe its because I suck at cooking. Ask my husband about the time I started the oven on fire (dropped a hot pad in the oven trying to get dinner OUT). Ask B about the time she requested cookies for school and asked if “Daddy” could make them because mine don’t taste quite as good. I accept that my cooking/baking skills are flawed, but when food school encourages cooking with your child it becomes not only intimidating, but also tedious. *Insert fake smile here* I know I need to suck it up and encourage B to create, create, create. I have to say the other frustration is knowing that we’ll cook and bake, and 90% of what we make will go uneaten. I HATE wasting food (Blame the former generations for the comment, “Think about all the starving children in Africa!”). Food school encourages playing, talking, and learning about your food, but not necessarily eating it (until the child is ready). I can only eat so much; therefore that leaves a lot of scraps left over (and unfortunately we don’t have a dog).

I have to remember to introduce new foods while integrating the “still learning about” foods. I guess I need to make myself an organized list or something to keep myself from losing my mind :)

Then there’s the process of introducing the new foods. We turn our foods into toys. We play games, we look at our foods like a scientist studying amoebas under a microscope. We smell them and even touch them when we’re ready. These thing happen if B’s having a good sensory day. If not, we may only complete step one: looking.

I should be able to accept the small baby steps. After all, I noticed even the tiniest of baby steps when I was teaching my students. I celebrated each and every success and milestone. Why then do I dwell on the fact that we can’t even get her to try a new type of chicken nugget or a new brand of cereal? We can’t send a closed-faced sandwich to school. It has to be open-faced. That she’ll only eat split top wheat bread. She will only look at a sausage link if it’s inside a plastic baggie. I get so caught up in the little things.

Don’t get me wrong, I know she’s made progress. It’s just hard to look back at 2.5 years of feeding therapy yet, she still doesn’t meet enough qualifications to graduate from the SOS food therapy program. My heart just breaks that I can’t make eating easier for her.

I sure hope that I can work with her as successfully as her food therapist has over the next few months. I’m going to try and blog about the journey as we work through it. I’m going to try and pick myself up, pray, and focus on my purpose. God picked me as B’s mom and saw me as one of her lifelong teachers :)

Psalm 32:8 ”I will instruct you and teach you in the way you should go; I will counsel you with my eye upon you.”

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About jhope

I'm a wife and a stay-at-home mom to our girls, 5 and 2.5 years old. Our five year old daughter has various sensory issues. Her biggest sensory challenges deal w/ food/eating and self-regulation tasks. Before I decided to stay home, I taught Special Education for 7 years. I've been blessed to teach so many children with different abilities. It has been an extremely eye-opening experience sitting on the other side of the room. Through writing, I hope to accentuate our positive experiences, share my frustrations with other parents, and educate people that kids with sensory challenges can be just as smart, strong-willed, sweet-natured, and endearing as other children. They may just need a little more support and understanding to show-case their awesome potential :)

    Comments

  • jenny from the block


    THat is great that she was able to manage on her own and get through it! Perhaps she did not want to draw attention to herself as being different from the other kids? Not sure of course, but my daughter is like that and wants to be “normal” at school. Sounds like you are doing great,though! Is B a very selective eater, then? I know mine is…I always worry about her getting enough nutrients b/c she is so sensitive to smells, tastes, and textures that there are not too many foods she eats!

  • jhope


    @jenny from the block….You are absolutely right. She doesn’t like being viewed as different from the other kids so she will try not to draw attention to the things that bother her. She is extremely selective. We were so worried about her after she started preschool that we searched around and found an awesome OT who started doing the SOS therapy approach with her to help her learn to interact with new foods w/o the constant sensory fight/flight and fear she was dealing with. The crazy thing is that even though she does’t eat much and hardly any proteins…she’s still not underweight. She’s always followed her own growth curve and continues to do so. That’s when we have the hardest time convincing others that she indeed has oral defensiveness when she comes to eating. Thanks for the comment. It’s great to know that we’re not alone in this journey!

  • Heather Finnegan


    My son is alive because of peanut butter and jelly-which by the way, he won’t eat anymore. We’ve never done specific food therapy, but his OT mixes it in. I’m supposed to be working with him at home too….and I was a teacher as well, regular ed, but still I know that children will work harder for someone they want to like them, like a teacher or an OT. Not always for mom and dad. Blessings as you journey through the next few months. Just do your best, that’s all any of us can do.

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