A poem for sensory awareness month:

October 18, 2012 by in Anxiety, Behavior, SPD, SPD Awareness with 8 Comments

WHAT YOU MAY NOT KNOW

My skin feels like it is on fire, tags poke at me like a hot wire.
My pants are too loose, or way too tight…no matter what, they just don’t feel right.
My shoes hurt my feet, I just can’t deal,
the pain I feel is very real.
Transitions are hard for me, structure and routine are a must,
disregulation and anxiety can lead to mistrust.
What you may not know and what you may not see
is that I am a child with SPD.
Loud noises and chaos can really freak me out,
because of this, I too, may scream and shout.
Sometimes I may hit, push, and run into things too,
please know that I am never really trying to hurt you.
I may need to be alone or have a quiet space,
it helps me to feel calm and my mind not to race.
Although we may learn differently, most of us are really quite smart,
learning to understand my needs will help us to have a great start.
What you may not know and what you may not see
is that I am a child with SPD.
Weighted blankets and compression vestS help give me the input I need,
a few among the tools used to help me to succeed.
I may have trouble sleeping and wake a lot with fear,
it helps to know you love me and that you’re always near.
Quite often I am misunderstood when I don’t behave like the others,
they think that I am naughty and, “not like my sisters and brothers”.
What they do not know and what they do not see
is that I am a child With SPD.
Our senses give our brains directions on how to think and feel,
My brain can’t read directions…my SPD is REAL.
You all have a highway where all of your senses travel,
I have a traffic jam… which leads me to unravel.
I don’t need to be judged…or felt sorry for,
I am just like you…although I struggle more.
Please take the time today, to learn more about ME
because I am more then my SPD!

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About no nonsense

I am a wife and proud mother of 3 beautiful girls ages 6, 7, and 14. The younger two were adopted at birth and are bio half siblings. My youngest daughter Annalise is the one who has SPD. We started on this journey about 3 years ago with her when we just knew her issues were rising above what would be considered normal for age. I have spent countless hours since that time educating myself on this disorder so that I could be the very best advocate for her. I believe as parents we are the best interpreters of our SPD kiddos behaviors and feelings. In having frustration knowing how some family/friends viewed her and other children like her, I wrote this poem to help educate and raise awareness. The words represent what I think she would want people to understand about her and this disorder.

    Comments

  • Jenny from the Block


    OK, I am crying my eyes out now!

  • Sybil


    I LOVE this poem!

  • Nancy


    Beautifully said!

  • martianne


    “Our senses give our brains directions on how to think and feel,
    My brain can’t read directions…my SPD is REAL.
    You all have a highway where all of your senses travel,
    I have a traffic jam… which leads me to unravel.”

    I love these lines.

  • Molly


    This is just such a perfect explanation and beautifully written. Well done!

  • Hartley Steiner


    This is great – I’m so happy you posted here! :-)

  • Ashleigh


    Thanks!! I posted this on my facebook page with a link to this blogspot. My daughter is 10 and we just found out this summer after YEARS of searching that SPD is what we are dealing with. We had been treating her for 2 years for misdiagnosed ADD. I hope you don’t mind me sharing. NO ONE in my community knows anything about this and I want to help them understand that this is REAL not just an excuse for behaviors I don’t want to deal with. Bless you. This is amazing!!!

  • Heather Finnegan


    What an awesome and quick way to explain this to others! Thank you for sharing!

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