Today is a day I wasn’t sure would come. My son was diagnosed at age 4 with Sensory Defensive Disorder. ALL 8 senses were affected. He received 20 OT visits as per insurance, then my husband’s position was eliminated Thankfully a family member stepped in and helped us pay for private OT as our school district was not helpful. We have gone through 2 more years of therapy and the Boy turned 7 this past summer, and is in 1st grade. There have been days I wasn’t sure we were even in the right tunnel, I had not even thought about finding the end of it!
Today I got to look at The Boy’s annual re-evaluation scores. This year he moved up to a harder test due to his age. Last year he still used the Early Childhood test, and still scored 2-3 1/2 years behind his chronological age in motor skills (both fine and gross). This year he did 4 tests. Two for gross motor; two for fine motor. On one of the gross motor tests he scored AT HIS AGE!!! And the other one only 6 months behind. On the fine motor tests he scored 6 months behind on one and 1 year behind on the other. His OT and I were not too concerned about that as when you look at the scores from each test-he is in the “average range”. Did you read that? HE IS AVERAGE!
INSERT HAPPY DANCE HERE!!!!!!!!!!!!!!!!!!!! Fists pumping, happy tears, twirling…and all of that!
Okay I am back. And his OT said that we are about to be done with OT. Not tomorrow, but soon. I am thinking less than a year soon….I am hoping like in 6 months soon. Not because I hate OT-much to the contrary, I will bawl like a little kid who has lost her ice cream to a dirty sidewalk on his last day. No, I am happy because it will make a world of difference to not write a $200 check twice a month, but also because, IT WORKED! My guy is a fully functioning member of his general ed classroom. His writing is as good as most of the boys in his class, better even. Not bragging my kid is better-just that for something he has struggled with for so long he is there. He has made it!
I see it in his work this year. I see it in his confidence this year. This is an awesome feeling!
Now, he still has SPD. He WILL ALWAYS have SPD. It’s likely that around adolescence we will need to visit an OT again. This is a neurological disorder and when the brain goes through major shifts it throws things back off “balance”. He’s gonna be my picky eater, and he may never color perfectly in the lines or be a star baseball player, (though neither would his mommy or daddy). Interoception still continues to be a struggle we face. However, he fits right in the middle with the rest of the kids And THAT makes me happiest of all