…And Footed Pajamas

 

 

Yay! My baby slept in her own crib for three and a half hours last night! That is the longest the she has stayed there in a very long time. AND… she wore her footed pajamas! Without yelling, or any excessive tugging, clawing and crying.

 

The Who and What

Kit hasn’t slept on her own in her bed all night since the minute she was born. Yes, even in the hospital, when it was time to settle down for the night, she would cry. We would check her diaper. We would swaddle her. Very tightly, just the way she liked it .We would lay her in that plastic bassinet thingy just like the nurses did. We would try giving her a pacifier, she would just spit it out. Then cry, and cry and cry and cry. Daddy would try and hold her, rock her, sing to her. More crying. Finally I would get ready to nurse her and as soon as Daddy would put her in my arms she would stop! Instant sleep. And I wouldn’t even have to nurse her every time.

She would sleep in her bassinet for about two to three hours in the late afternoon on most days in the beginning. But within just a few weeks that quickly dwindled down to thirty minutes, tops. Nights were worse. We’d nurse, she’d fall asleep, I’d put her in her bassinet. Max time: one  to two hours. If I left the room, say to take a shower, she was awake as soon as I walked out. And crying. Until I came back and held her. The  only time she would stop crying for Daddy was when he held her up directly in front of the small box fan we had in our bedroom with the fan on low. Some how the air blowing on her calmed her enough to allow me to rinse the shampoo out of my hair and towel off, sort of. But this didn’t work all the time and it wouldn’t work for me.

The When and How

At two weeks old she got a little cold and wouldn’t tolerate being away from me at all. I still persisted and tried laying her down when she was drowsy, or awake, or almost asleep, or in a deep sleep. The ultimate result was always the same. Her crying until she was securely near enough my bosom to be attached or at least to smell very well. After several weeks, out of sheer exhaustion, I would just let her lay way up by the head of the bed, swaddled as tight as I could get it, and I would lay lower so that my arm when bent like an L would rest by her side. She had to be touching me. More than once I would awake to find her face next to mine, her cheek against my forehead. She had wriggled more than eight inches, while tightly swaddled to have her face against mine.

Still, for sixteen months now, EVERY NIGHT, I place her gently into her crib, well after she has fallen asleep. Most nights, she stays there for about an hour. Many nights she’s only there for about thirty minutes. Often, she wakes enough as I’m laying her down only to start crying. We simply abort that attempt and I lay her in my bed where she usually drifts back off. Sometimes she needs to nurse to get comfortable again. Sometimes I can firmly rub her back and the back of her legs and that will sooth her back to sleep. Then a while later, we try again.

Every attempt I have ever made to put her in her bed and get her to fall asleep on her own has just made her and us miserable, irritable, and seems to heighten her anxiety about sleeping in her crib. We have tried music of many different varieties. Lights that change slowly and softly. Things that smell like lavender, or vanilla. I tried swaddling her in a t-shirt that I had slept in for a night or two. I would slip her whole bassinet mattress into my pillowcase that I had slept on for a couple of nights, or wrap her in a swaddling blanket that I had snuggled between my breasts while I slept. We played with the temperature, making it cooler so that she might be more comfortable if she were hot, raising it in case she was cold. I bought about seven or eight different kinds of pacifiers in hopes that she would finding just one that she could use to suck on instead of using me as her binky. Everything was rejected and the results were still tears, hers and mine now.

The only two attempts I made to let her cry only resulted in an extremely panicky baby and a guilt-ridden panicky mommy. (I tried several cry it out methods with her older brother, a horrible experience seared into my memory, which did more harm than good to both of us and didn’t work in the end. In the end he needed more security [twenty something stuffed animals], less confinement [we put him in a toddler bed at 18 months], lots and lots of wind down time [nearly an hour of reading to him],and a fish tank for light and white noise. More on this later!)

When she suddenly started to detest being swaddled around five months, I felt like I lost all hope of her falling asleep on her own and staying in her own bed all night. That was when her clothing complaints started. She absolutely wouldn’t tolerate long sleeves. She would cry and pull on them and pick at them until we would take them off.  So I would have to wait until she was asleep and then try to wrap her up in a blanket so that her little arms wouldn’t get all goose-bumpy. This progressed to her not tolerating ANY blanket whatsoever on her AT ALL! if you put it on her after she was asleep, she would wake up shoving it off and crying! Then we had to go through getting to sleep all over again.

Her refusal for coverings soon extended to socks (she absolutely HATED shoes, immediate meltdown), then long pants, then shorts, and eventually all clothes period. She started walking at ten months, and with that came the discovery that she could remove her diaper and run free and naked. It was right around then that we switched to cloth diapers and she found the snaps on those too hard to open so the diaper wars at least ended. Through trial and error I just kept trying on clothes with her and for about four months she wore mostly just soft well washed cotton one piece t-shirts. If pants were required, she tolerated soft, well washed leggings best. She wore these even to sleep in though on very cold nights I would put her in a long sleeve onsie with NO elastic around the wrist, and leggings. I would and still do put her socks on after she is asleep. These two issues were what spurred me to start actively searching for answers.

The Why

Both Kit’s sleep issues, and Zak’s were among the many behaviors/symptoms of the many SPD evaluations I filled out online and in the books I’ve been subsequently reading. Their nurse practitioner was not as convinced as I was and seemed to feel that it was more likely a case of me just being well trained. She wasn’t entirely dismissive of my concerns, but her thoughts on their behaviors that I described to her went in a very different direction than mine. For Kit, she gave me an M-CHAT evaluation to fill out. I did and returned it to her along with several evaluations for SPD.  Though I haven’t gotten exactly to the details of why, I believe their sensory issues are making peaceful sleep difficult for them. I haven’t found a solution yet, and since medical advice is slow in coming to us, I’m left to my own research and devices. We have ordered them both a weighted blanket, but we have a month or so before we receive them. I know that normally a therapist is involved in this sort of sensory guidance, but we may not have access to an OT for a very long time and we need help NOW. So I’m trying to do careful, detailed research to find possible helpful solutions. In the meantime, we have found that a bath shortly before bedtime does seem to make a difference in how quickly she falls asleep and how well she tolerates long sleeves or footed pjs. Maybe it even contributed to her prolonged stay in her own bed last night. Let’s hope so.

If you have a child with sensory issues, please, share your wisdom with us in the comments about what you have found to help your child rest at night. We welcome all supportive suggestions.

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About tutyfrutyjudy

My name is Judy. I'm the mom of three great kids. My oldest, Zak,10, and my youngest, Kit,1, we believe have SPD in the primary form of sensory seeking. Grace, 6, our middle child seems to have a few specific sensory issues, but we don't think she has SPD. We are still trying to get help and hopefully a diagnosis. In the meantime we have many awesome adventures, and laugh a lot! Please come on over and visit us at my blog. http://hide-n-sensory-seeking.blogspot.com We certainly have our challenges, but life is a canvas and we are busy making great art!

    Comments

  • Stacie


    Not trying to be scary but I have commented on this before. Our daughter had sleep and sensory issues from day one (preemie, 3lbs, 11oz). She is now 9. She didn’t sleep alone or for any extended amount of time until she was 5. She never napped, never slept in blocks, never nursed well or took a pacifier. She only slept on our chests and even then was restless. We found out when she was in preschool that she was actually having seizure activity while asleep (and occasionally in the day time in the form of staring spells). I really believe she was afraid of being asleep and alone. When she was asleep, the seizure activity would abruptly jolt her awake and not liking that sensation, she resisted sleep. At least with us, someone was there for instant comfort. She also has SPD and my neurologist and I are confident these are related for her. She is on a low dose of seizure medication. That impacted her sleep almost immediately. Within a few months of the meds, she was sleeping alone, in her own bed, through the night. Also, combined with OT, her SPD has significantly improved over time. She also exhibited picking behaviors (she didn’t like loose skin, hair sticking up, scabs, etc and would incessantly pick for smoothness) that have significantly lessened over time. I’d highly recommend a sleep study – it would get at all of this. The traditional EEG didn’t capture seizure activity for my daughter because it only lasted an hour and of course she wasn’t able to fall asleep for it, despite my keeping her up really late and waking her really early the day of.

    • Tutyfrutyjudy


      Thank you so much for sharing you’re experience with me! You surely know the frustrations we have felt. And sounds like you’ve had some scary moments as well. I’m so glad you finally got some answers and found treatment which has been working for your family. I’m going to remain alert to some of the seizure symptoms you mentioned, and I’ll put it on my list of questions to do more research on and possibly bring up when we finally get an appointment with the pediatric Psycologist. Thanks again.

  • Robyn


    My son is 4 and has SPD, I also suspect ADHD. He has slept through the night in his own bed, maybe 3 times in his life. If he sleeps with me he is fine, except that his touches and rubs on my face the entire time and is practically on top of me, and I don’t get any sleep. I co -slept with him and wanted to stop around age 2. To this day he starts out in his bed, but like clock work, wakes at 2 or 3 am and comes to our room. DH thinks this is all behavioral and locks the door and won’t let him in, he wants to ignore him, or let him CIO. It breaks my heart. He doesn’t believe that SPD is the cause for this. Even if we put him back in his room, he usually wakes up a couple of hours later. If is is 4 or 5 am I just let him in our room. The sleeping situation causes many issues in our home. I too wish there were more evidence on how SPD effects sleep.

  • Erin


    My 4yo daughter with SPD is/was the same way. She slept in a crib for a few.months, but woke every hour or two. She still now cosleeps with us. If not, no one gets sleep. At least this way, we all get some and she gets what she needs so that her SPD isnt so bad…its definetly worse when shes overtired. You’re not alone. We all walk the road together, hand in hand. Walk on, Mama!!!

    Gonna go check out your blog now!!!

  • Sabrina


    How did you manage the footie jammies? Did you find a brand without elastic?

    Oh, sleep. The ever elusive night-time opiate. My littlest one wakes up like clock work every night around 10:30, again around 3, and is up for the day around 6:30. There used to be hours of screaming at every wake up. Now he is three and finally able to verbalize a few things, and the disruptions are usually settled within a few minutes. Unless I fail to go to him in a timely manner. Then he spirals into a sensory melt-down amplified by my lack of nocturnal patience. My husband says we need to let him learn to go back to sleep on his own. I let him try that once. It didn’t work. Ever. An entire month of not sleeping and I finally gave up. If someone ever does a study on SPD and sleep, I would so support that.

    • Tutyfrutyjudy


      Every now and then everything comes together just right, and that evening was one of them. She had had a busy day, lots of climbing, jumping, chasing after big bro and sis, so she had just the right combo of input plus energy exertion. Then Daddy gave her a long, warm bath with lots of sponge rubbing at the end. She was so calm and tired and I guess had finally reach a sensory balance that I put on the footed jammies and immediately nursed her, she fell asleep instantly. It was euphoric! Of course she was tugging, pinching, and ready to throw her self on the floor about them come morning.

      That was a while ago though and she’s not tolerated the footies again since then. :( I’ve never bought her any since she tolerates them so poorly, they were a pair that had come from a friend when she handed down some clothes to us. We have a pair with the most adorable monkey faces on the feet, but those are worse because he attention is constantly drawn to her feet, which she then realizes have something on them! I really wouldn’t care to keep trying except that we don’t have central heat, and our bedroom can get quite nippy on the colder nights. Oh well.

      Thank you to all of you for helping me feel like we are clearly not the only family dealing with this. Sometimes I just feel like I must really be crazy, but then I’ll come on here and see that so many others are dealing with the same, and many with much more difficult challenges. Hugs to us all! (unless of course you don’t hug, then just fist bumps, or high fives, or waves, it all works!)

  • Sabrina


    I understand about having something randomly work one time and then never again. Sometimes it is so frustrating. You feel like you are making progress, and then something as little as a cold virus puts you back to square one. (My littlest one has a cold, and he is pretty much a ticking time bomb right now. EVERY little thing makes him cry.) Sometimes I think he was easier when he was a newborn because at least then we expected him to cry a lot. And we weren’t planning on sleep. At three years old, nobody understands when I tell people he isn’t sleeping through the night. My mom is convinced that I’m a terribly permissive parent because I let him have his own way so much. She says I should just “make” him do things. Why do so many people think SPD is just a made up diagnosis to help mom’s feel better about over indulging their children?

    I am so glad I found this website this weekend. I seriously feel like I’m going to go insane some days.

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