Posts by MommyCser

The Language Barrier

January 24, 2013 by in Autism, Diagnosis, SPD with 4 Comments

I want to talk about what it’s like to have a non-verbal toddler. I’ve touched on this before, many times, but I want to talk specifically and solely about this. And lately, I’ve gotten a lot more “likes” on my blog’s FB page by those who are in the autism community (for which I am grateful, because this is when I feel the feedback will really start coming….for better or for worse!) and so I’d like to share my experience with this to see if anyone else out there has some insight, hopeful stories, or just plain perspective.

Unlike many other young autistic children, my son has not yet uttered a single word. Some parents have experiences where their children hit each of their milestones, including speaking, and then watch them drift away at around 18 months of age. This seems to be pretty “typical” when I hear parent’s tell their autistic child’s story. I have never been able to relate to this. Jacqueline Laurita, of Real Housewives of New Jersey, fairly recently went public about her son’s autism. When I first heard this news, I was watching the reunion show (of which I have admitted many times, I have an unhealthy addiction) and she was having a very emotional discussion about this fact. Of course, I cry at just about everything these days, but when the audio recording of her young son’s voice ended a beautiful montage of him in which he uttered the words, “I love you” to her, I began to sob. I felt so incredibly sad for her to have had that moment with him, and then to have watched it slip away into the ‘abyss of language’ that is Autism. How could she have known that this may have been the last time she would hear these words from him for a very long time? (I choose not to say ever again, because I always believe that these kids can find their voice again!) I could not get over how heartbreaking that must have been for her. I still cry when I think about that. Not just for her, but for every single parent who has that faint memory of their child’s sweet voice remaining in their head, and now just looks into their distant eyes each day and no words are exchanged. I’ve heard this story over and over from parents whose kids have “lost language” at some point, but to actually hear that little voice so clearly, and to know that it just suddenly disappeared, really was a heart wrenching thought for me.

…continue reading


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Telling it Like it Is

November 29, 2012 by in Autism, Behavior, Parenting with 7 Comments

Ok, so here it is….a rant.  I try to stay positive about life to keep my sanity, but I write this blog because people wonder what it’s really like on the inside of an Autism family, and this morning, at 4:51 am, as I have already finished my shower, and already watched the complete Toy Story movie with Nicholas, I’m going to tell you how it really is/can be.

Here is just a tiny glimpse into the night-life of this family. (Which I’ve shared before, but it’s ongoing, and evolving at this point.)  Now, granted, it does not happen every night, and in fact, it’s happened less lately than it has in several months. But when it happens, it happens, and it’s bad.

After a long day with the kids,  I am usually wiped out. It is rare for me, anymore to stay up past 9 pm during the week, mostly because I’m afraid of who is going to interrupt my sleep on that given night, and I just want to maximize my zzz’s while I can.  This means that my husband and I spend very little time together to begin with, because dinnertime and bedtime activities fill the hours when he comes home from work around 5:30pm, and by the time the kids are down, the kitchen is cleaned, and I have had 15 minutes to look on my computer at whatever I need to, I have hit the wall and can’t stay up any longer.  So you have that…. …continue reading


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The I.E.P(hew!) Meeting

October 3, 2012 in Autism, IEP, School with 3 Comments

I have come to grips with having a child with special needs.  I have mourned the loss of the idea of what my son’s childhood would look like, and accepted it for what it is….uncertain,

Funny Signs: A Tale of our Dinner Out with the Kids

June 29, 2012 in Autism, Humor, SPD with 2 Comments

Last night, when out to dinner with my Sis and Bro-in-law, I was reminded of a story I told them a while ago that I thought was pretty funny. Figured it would be a good

Octopus’s Garden

June 3, 2012 in SPD with 3 Comments

Today was an extraordinary day for me (us.) To some, it may not sound like much, but for me, it was priceless. Today was the beginning of my first overnight stint (during the week, filled

Evolution

December 8, 2011 in Parenting, SPD, Therapy with 4 Comments

I had an experience the other day that was neither good nor bad really, but mostly caught me off guard. As I thought about it afterwards, I thought it worth sharing with other “sensational” parents

Some feeding issues to chew on…

June 17, 2011 in Eating Issues, SPD with 25 Comments

This is my first post, though I’ve been checking out this site for a few months now.  My son is now 2 1/2, and has not been diagnosed with SPD specifically, but has both fine/gross

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