Posts Filed Under Advice

Sensory Issues and the School System

My boy has been struggling lately.  Within the past 2 months, we have nearly doubled his previous therapy schedule, adding an additional speech and OT session weekly because he needed the extra help.  In addition, he has started special education preschool where he goes 5 mornings a week for 3 hours each.

All of this for a 3-year old, but as we are all aware, this is what some of our kids need in order to progress and grow.

I am so excited for the potential – and there is such potential – for additional progress with the increase in his therapy program and the addition of preschool, but as you might imagine, the transition is a nightmare.  My boy has been a stimming, disregulated, hot mess, and it is wearing this mommy down. …continue reading


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The Respite Requirement

May 1, 2012 by in Advice, Parenting with 8 Comments

I have been a special needs mom now for nearly 10 years. That sounds much more impressive than it is mostly because when my oldest was young, I didn’t believe I was a special needs mom, let alone have the guts to say it. The only thing I really would admit to was that parenting my son was challenging.

Ok not just challenging, but demanding, and unusually exhausting. Which made me feel like an utter failure. I remember having conversations with my husband where I was in tears saying I needed help with everything from the kids to the housework, where I tried to explain how I could be so overwhelmed after a day at home ‘just’ taking care of the kids and running errands. He never understood why I wasn’t giving Mary Poppins a run for her money and reminded me often that it was ME who wanted to be a stay at home mom. He was right  -  I did want to be a SAHM  -  but I never expected it to be so unbelievably hard, and I sure didn’t expect to be so bad at it.

I watched friends and neighbors parent their kids and it seemed like it was effortless for them. Packing up their toddlers and babies and heading to grab lunch with their friends at a restaurant, or heading over to watch the city parade on a whim, or strapping their little ones into a double stroller and hitting the mall to do some shoe shopping. How did they manage that?! Back then I didn’t really understand how incredibly different my life was from theirs. I hadn’t adopted the term ’special needs’ for my boys, or me and I sure didn’t think about respite. Perhaps I was even opposed to it. That somehow my need for a break only confirmed how much I sucked at parenting.

Fast forward a few years, add two more boys to the mix and a handful of diagnostic acronyms, and the picture was a tad clearer: I am a special needs mom. …continue reading


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It Isn’t Regression!

April 26, 2012 in Advice, Behavior with 14 Comments

This is the time of year where parents all over the world are wondering, worrying and asking, “Why is my child regressing?” with a level of terror usually reserved for things like walking into your

Welcome To Walmart

April 20, 2012 in Advice, Autism, Diagnosis, Humor, SPD with 12 Comments

Okay, so when your child gets diagnosed with any form of special needs, they give you a copy of Emily Perl Kingsley’s “Welcome to Holland.” She’s a mother of a child with Down syndrome who,

We now live in an (cheap, small, DIY) OT gym

Our apartment is gorgeous and new. And small. Two bedrooms, on small living area, kitchen, bathroom, tiny utility/laundry room. There are no hallways, no transition spaces. When the doors are open, you can see every

Reduced Stress Easter

April 4, 2012 in Advice, Holiday with 0 Comments

Easter is another holiday that causes anxiety for us. Most holidays do because of the unpredictability and lack of routine that each and every holiday brings. Last year our Easter didn’t go so well, and

Help, I need somebody

April 2, 2012 in Advice, Behavior, SPD with 27 Comments

I’ve only written a couple of posts but I am on here almost every day.  I use it to get advice, ideas, and just to feel normal.  I am sending out a plea to all

Never Lose Hope

Here is a letter to an individual who believed my children wouldn’t be successful. This is living proof that as parents, we are wiser than others who think they know better. Dear Parent Educator, I

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