Posts Filed Under Neurologist

He’s Not Just Quirky.

I’ve told our story to, what feels like, 4 million people…doctors, nurses, therapists, nutritionists, family, nurses, co-workers, bosses, friends, babysitters, insurance companies, human resource representatives, insurance agents, and one time to some random women in the grocery store line that may have involved tears and another teary moment in an elevator to another parent (thank you random person for telling me that I am validated in my freaking out moment).

Oliver has and always will be, just O., or the Monster, or my baby, or Oliver. I’ve spent the last 2 1/2 years explaining away his behavior. “He’s just quirky”, I’d say. “He’s just smarter than other kiddos”, “That just his personality”, “He has a big imagination”…. but then came our breaking point… and a wake-up call from my husband….

O isn’t “just quirky”…

Following a moment of complete breakdown in the cracker aisle at a grocery store on our monthly, family grocery trip D looked at me, hand on my elbow, as both O and I are sobbing and said “We need to see a doctor. This is not normal and not healthy”. I agreed.

“He’s not just quirky”.

We made an appointment with our pediatrician and our life has never been the same since. We hadn’t been in the office for 5 minutes before our Doc suggested Asperger’s and sent us to a neurologist immediately. I appreciate the support from our docs but within 2 weeks we went from a normal child to 3 therapists, a ped, a neuro, and a marriage that consists of discussing how to handle our child. I’ve been married to D for 7 months and been with him for 3 1/2 years and in the past 12 months we have done nothing besides handle our child. I watch O sometimes and want to scream at doc when I can finally talk to a live person and not a voicemail or an appointment 3-4 months away. I want to scream, what can I do NOW. Right now.” …continue reading


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Not Alone

So, I haven’t written here in ages. I have meant to. I have begun to type posts to share about appointments, incidents, challenges and cheers. But, one thing or another has distracted me, and I have ended up publishing nothing but comments on others people’s posts, which, I admit, sometimes could have been posts in and of themselves. (Thank you, by the way, for moving me to dialogue with so many of you!)

Yes, since the inception of the SPD Blogger Network, other folks’ words have made me think, made me smile, made me cry, made me realize I am not alone and… Okay, I admit it. Sometimes done the opposite. Sometimes, reading about others’ experiences has made me feel even more alone than ever.

Why?

Because my son is “unique”. (Oh, for a dollar for each time I have heard him described as such!) His symptoms and behaviors don’t seem to fit into any official diagnosis neatly. In fact, I have been told by a neuropsych that my son is “unique even among the children (that he) sees” and that we have a “long, hard road ahead of us”, since our son does not fit classically into most dx’s, but definitely has ADHD and sensory challenges. …continue reading


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My 2012 Goal: Help my daughter and find answers.

Of all the jobs in the world, being a parent may be the trickiest. It really doesn’t matter whether you have a disabled or non-disabled child, as parents we want to do the very best

Could it be SPD?

My oldest daughter will be 7 in January and ever since she was born there’s been something not quite right.  She never slept as a baby, and I do mean “never.” I could get her

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