Posts Filed Under SPD Awareness

Guilt-Free Grieving

The first time you hear the doctor say that something isn’t right with your baby a thousand thoughts and feelings fly through you at the speed of light leaving you breathless.  You find yourself just sitting there, almost looking on without being involved and knowing that something hurts deeply but still not really feeling anything. When the shock wears off there are moments when you wish you could go back and live in that spot where the pain hasn’t quite kicked in yet. But it does wear off, and reality does set in and the pain does become incredibly real.

Sometimes I have found in my own life that allowing the grief is one of the hardest things to do. It’s easier to just keep trucking and telling myself that everything is just fine.  There is a guilt that comes along with that grief and the two seem to be best friends for a time. There is grief over what won’t be any longer, over the dreams that you had that came crashing down.  Then side by side with that is a guilt for feeling as a parent you are slighting your own kids by grieving what you wanted them to have and what you wanted them to be. …continue reading


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A Mirage of Normal in SPD

June 12, 2011 by in SPD, SPD Awareness, Therapy with 8 Comments

We have told our story a thousand times. We have told our story so many times that it’s almost rote now, no emotion, just fact. It sounds cold, it sounds harsh, but after you tell your story so many times and to so many different people, it begins to feel like you are walking through the desert begging for a drink of water.

Sitting in family therapy, telling our story last month, it became different. We had told our story to the therapist many times. We had given her different pieces of the story and we had spent countless hours explaining the “World According to D.”

This day, however, something clicked. It hit me hard, like finally finding that drink of water in the hot desert, only to find out it was a mirage.

SPD did not start one day, D had dealt with it since the very beginning.

The mirage in our life was that we could go somewhere and our son would be happy, well behaved, and enjoy the outing.

Family therapy that day helped me realize that in those very early days when D was shrieking through the store while I was trying to buy groceries, he was not intentionally misbehaving. He was not trying to draw attention to the fact that I had no control over my child and that I was quite possibly the most frazzled Mama in the store.

D was trying to tell me that he could not handle anymore sensory input. He wanted me to know that he had true pain – physical, emotional, mental. The lights, sounds, and smells were causing sensory overload. It was more than his little body could process. …continue reading


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Help the SPD Foundation WIN $250,000!

June 3, 2011 in SPD, SPD Awareness with 3 Comments

Hello Friends! The Vivint Gives Back Project is donating $250,00 to the top charity in each region of the United States! All it takes to become the top charity is to get endorsements/votes from supporters

Meet The SPDBN Team!

May 27, 2011 in SPD, SPD Awareness with 0 Comments

Four months ago, we were getting ready to go live with the new SPD Blogger Network site. This site was Hartley Steiner’s dream.  She wanted a place where parents of children with sensory processing disorder

It’s What You Don’t See

May 25, 2011 in School, SPD, SPD Awareness with 8 Comments

When a person has a disability that affects them physically, like Down’s Syndrome, or Cerebral Palsy, the world can see it. They have a plate full of challenges, for sure, and it comes as no

We’re Hiring for a Review Editor! Join Us!

May 9, 2011 in SPD, SPD Awareness, Support with 1 Comment

Passionate about Sensory Processing Disorder?  Have great organizational skills?  Love finding new sensory-friendly products?  We want you! The SPD Blogger Network is growing at an exciting rate – and is expanding its team!  We are

SPD and lack of empathy?

May 7, 2011 in Parenting, SPD, SPD Awareness with 8 Comments

It never ceases to amaze me how little is known about SPD, especially here in the UK.  However, it is refreshing to have a conversation for once with someone who doesn’t automaticaly assume that because

How to Tell Your Child He Has SPD

May 4, 2011 in Advice, Parenting, SPD Awareness with 11 Comments

A young couple walked into a support group meeting I attended the other day; holding hands, exchanging glances, and looking worried and nervous.  I quickly offered them a seat next to me, and listened closely

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