Posts Filed Under Victories

Not Your Average Mall Santa

This was not just about seeing Santa.

This was not about having my kids sit on his lap and tell him what they wanted.

This was so much more than that.

This was a room full of families looking for an atmosphere where their child could just “be.”  With no one staring, no judgement, no whispering.

This was a room filled with special needs children.  There was hand-flapping.  There was crying.  There were kids (mine) walking around a table over and over and over.  There were kids on iPads. There was a train set.  There were autism-friendly toys.  There was Polar Express playing on a big TV.  There was a play-doh table.  There was a woman blowing bubbles (Easton’s favorite).  There were no lines of people.  There was a mom, crying, talking to a woman from the Autism Society of Nebraska, who helped organize it, saying “thank you so much, this was wonderful.”

This was a room full of acceptance and patience.  It was an opportunity for families to have a stress-free environment for their kids who get stressed easily.  It was a community coming together.

I found out about this Sensory-Friendly Santa photo shoot from Easton’s OT, who called me several weeks ago to tell me she got an e-mail from the Autism Society about it and specifically thought of Easton.  I wasn’t even planning on doing the whole “Mall Santa” thing this year.  It’s just not worth the stress.  But I signed up for this event, thinking it might be worth a try.

Easton walked right over to Santa when it was our turn, mainly because there was an elf blowing bubbles.  I said, “Say hi to Santa!”  He started singing “MUST BE SANTA!  MUST BE SANTA!” without even looking at the big man in the white beard.  In fact, he never actually looked at him.  But…he let this stranger get in his space. …continue reading

Grandparent’s Concert a success!

October 24, 2012 by in Inspiration, Social, SPD, Victories with 4 Comments

I woke up this morning with a feeling of dread. Today was the Grandparents Day concert at Lubug’s school.  This is where they take three grades at a time and pile them all into one set of risers and the kids sing songs for  80 to 100 grandparents and parents. It’s adorable, but for a 5 year old with SPD its overwhelming. And to a parent of a child with SPD it’s anxiety filled because you are never sure just what the outcome will be.

Lubug was SO excited about the concert. She had been practicing her songs for days . I started to get my hopes up. Maybe she will be OK! Maybe she won’t meltdown when she sees all the people. Maybe the closeness of everyone won’t bother her. Then I thought back to cheer clinic 3 weeks ago.  Our cheerleaders put on a clinic every year and the girls get to go out on the field at half time and perform. SHE WAS PUMPED! She had her t-shirt (sans tag) little leggings, and ponytail going on. It went great and then they stepped out on the field.  MELTDOWN …continue reading

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There is a light at the end of the tunnel

Today is a day I wasn’t sure would come. My son was diagnosed at age 4 with Sensory Defensive Disorder. ALL 8 senses were affected.  He received 20 OT visits as per insurance, then my

Something I Never Thought We’d Do

September 10, 2012 in SPD, Support, Victories with 4 Comments

This summer, the girls and I had the opportunity to visit the Canadian National Exhibition (also known as the CNE or the Ex). My mom was volunteering at a china painting exhibit and offered to

Doing the Back-to-School Jitterbug

August 27, 2012 in Anxiety, Autism, School, Seekers, Siblings, SPD, Victories with 3 Comments

Our district does a “Meet the Principal” Day a week prior to the start of school for the elementary students. This day allows the kids to visit their hallways, say hi to their principal, check

Way Down In Crown Point, In Indiana…

July 23, 2012 in Anxiety, Autism, SPD, Summer, Victories with 8 Comments

You know how, before you had kids, you would think about what it would be like to be a mother? You know, like how your children would look and act. How you would play with

Amen

If you are not familiar, we have attempted church with autism. And though I have never given up hope, I have not been actively pursuing success since. Today I felt hopeful and maybe even a

Best Day of Summer…..Ever!

July 9, 2012 in Anxiety, Autism, SPD, Summer, Victories with 2 Comments

Bass Pro Shop is a very cool store.  Most kids…..and big kids …..like to spend an afternoon playing there.  This summer Bass Pro even offered a free family program where the kids can take as

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