occupational therapy – what it looks like

each of harrison’s OT sessions is just a bit unique but they all have the same format.

we do therapy three times each week. you can read about STAR center’s intensive treatment model HERE.

we arrive at STAR, sit in the waiting area for a few minutes until juliana (harrison’s OT) comes to fetch us. she helps harrison put on his “jet pack” and headphones. the “jet pack” is a cool, boy-friendly term to describe a backpack. inside the backpack is a well-protected ipod which feeds music to the headphones that harrison wears while we play. this is called integrated listening therapy. you can read more about it HERE and HERE. my understanding of it is that the music harrison listens to – mostly classical and some chant – has been engineered to highlight different tones. the different tones in the music – low, mid and high – affect the brain differently and help to create new pathways in the brain.

as i’ve stated before, i may be making all that up. so research it yourself to make sure i’m not leading you astray! :-) …continue reading

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It never gets easier….

May 2, 2013 by in Behavior, Parenting, SPD with 2 Comments

When my son was diagnosed at 8, it was like “FINALLY!  IT ALL MAKES SENSE!”  SPD is not something you just “get”, you’re born with it.  So all of his past strange behaviors weren’t his choice, they were due to his SPD.  So you think you have a handle on it, you know what to expect.

Then your child hits puberty and an becomes a teenager and everything gets worse.  Why?  Because their symptoms, while they had always been there….lurking below the surface of the other ones, now have come to a head.  The anger, the rage, the flippin’ out (or as I call it “being belligerent”), and the lack of empathy.  Now granted, my son has always had a problem with anger….and before the SPD diagnosis, we thought of his anger problem as just that: an anger problem.

But now as a 6’2 15 year old, the anger isn’t “cute” or even manageable at times.  Its not constant, but when it happens, its not pretty.  Very seldom does he actually get “belligerent” (which means to me a type of anger that goes beyond “normal”, that includes name calling, swearing, breaking things, totally out of control, he can’t even stop if he wanted to).  Usually it’s just screaming at people.  Sometimes it includes hitting his brother (who sometimes hits him first or vice versa).  But when he does get belligerent?  It’s scary.  Its like its not even him anymore.  He’ll even go as far to tell me what a crappy parent I am (in meaner words) because I don’t give him what he wants and has on 2 different occasions try to hit my husband.  I’ve seen my ex (his birthfather) act like that from time to time (not hitting people though), so perhaps it IS an inherited (or learned) anger issue mixed with SPD?  I sense its not actually learned because my ex wasn’t around him enough when he was little for him to just now at 15 start acting this way.  I think its total frustration breaking him down with whatever he’s obsessing on and can’t have. …continue reading

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Saying Goodbye

May 1, 2013 in Anxiety, Parenting, SPD with 1 Comment

In January, my nonna (grandmother) passed away.  She was 90 years old, and though they didn’t speak the same language, Angel really thought her bis-nonna (great grandmother in my family’s dialect) was pretty neat.  After

Dear New SPD mom,

April 24, 2013 in SPD with 4 Comments

Dear New Special Needs Mom, We are coming up to our 2 year anniversary of finding out Drew has “issues”. It has been a journey of ups, downs and emotion high and lows. I have

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April 23, 2013 in Behavior, SPD, Support with 4 Comments

We work. We succeed. We cheer! And then…new behaviors pop up. Or old behaviors reemerge. Just when you think the oral fixation is a thing of the past it returns with a vengeance. Yep, that’s

That’s My Boy

April 18, 2013 in Autism, Behavior, SPD with 6 Comments

It’s been about 14 months since I initially contacted First Steps in February of 2012. I know I am still a newbie with much to learn, but I feel like such a different person than

Assistance Dogs, Magic and Autism

April 12, 2013 in Autism, Behavior with 6 Comments

Last November I got a phone call that I was anticipating for a few years. It was the lovely Aileen from Irish Guide Dogs for the Blind telling me that  an assistance dog had been matched to our family,

Lupus and Sensory Processing Disorder Don’t Mix!

April 11, 2013 in Behavior, Parenting, SPD with 3 Comments

I woke up this morning to the rambunctious sounds of my little men bouncing off the walls and into each other, with the under current tones of prodding reminders from my Knight in Shining Armor husband trying

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