Articles Tagged Seekers

Staring down the path; our journey before the diagnosis

May 21, 2013 by in Parenting, Seekers, SPD with 0 Comments

I’m new here.  Though technically, I should have found this place long ago.  I’m M, but I go by Coastinganon on the “internets”.  I’m married to my husband, D, who has yet to receive an internet alias and we live in Boston with our a-neuro-typical son, Little G, who will be 4 in early July and our daughter, Ladybug, who is 18 months and yet to show any major signs of anything other than 18 month-ed-ness.

Motherhood was supposed to be my dream job.  When Little G arrived, all 10lbs-5oz of him, by natural birth on 07-08-09, he was perfection.  I was in a mental state of bliss over having birthed him.  He latched on in the hospital, something I had been particularly nervous about due to surgery in my history, and we went from there.

The first few days home were typical for any new parent; little sleep, concerns over latching properly, total bliss, grandparents, laundry, excitement, tears, etc.  What sticks out to me the most from that time was an almost primal need to guard my child.  I felt like everything in our home was different, which may have been a product of nursing in a rocking chair in the dining room which is a room that until that moment I had only sat in for meals.  I can remember having Ally-McBeal-like visions of me swiping at people who were holding our son while he cried.  Looking back, it is awe inspiring to me that the hormones racing through my body at the time could have been so powerful.

A couple of short weeks later, I was on my own.  Little G hadn’t been latching well.  I had a very slow flow and he was desperate for food.  I developed mastitis and an infection on my nipple.  He would nurse for over an hour at a time and still be raging mad when he ‘finished’.  The hormones were still raging in my body and one day while he was sitting in his bouncy wailing away, I lost my temper and yelled at him; a three-week-old baby. I know now I was neither the first nor the last over-tired, short-fused, new mom to do so, but that still didn’t make it any better.  I would love to say I got help at that point, but it took much longer for me to realize I needed help.

As Little G grew, things got easier.  My PPD (though really, it should be labeled PPA/R/C [anxiety/reactiveness/catastrophising]), diminished each day as he got older, but there were still days that pulled the feet out from underneath me.  From as early as 10 months old, Little G would have temper tantrums that consisted of him instantly not liking something and then hurling himself backwards from a seated position to slam his head full-force on the floor.  It was so discouraging to see him hurt himself in that way.  Then came the biting and the pinching.  If I wanted to hold him and comfort him he would get angrier and bite my shoulder, hard, until I let him go.  It was certainly not the amazing mom experience I thought I would have prior to having him.  I didn’t know much about children, but the only thing I DID know was that mom’s comfort their babies.  And now I had a baby that didn’t want me to comfort him.  I was devastated every time he lashed out at me. …continue reading

The Little Engine That Could(n’t)…Slow Down

February 28, 2013 by in Parenting, Seekers, SPD with 3 Comments

We have not told Zak (10) that we believe he has Sensory Processing Disorder.

I thought it would be difficult not to tell him when we started introducing things like a weighted blanket. But it’s actually not been difficult at all. Most things, like the spinner and exercise ball he just thinks are awesome toys, which they are. And when we talked to him about a blanket that might help him fall asleep better he was all for it. He didn’t care that much about how it works, he was just excited to have something that might help. 

Same thing when we addressed his chewing issues. He had been asking for a “chew toy” for a while anyway.

So we haven’t really had to tell him yet.

We do plan to tell him though. We are waiting, however, hoping that we might get an actual diagnosis first. Realizing, though, that that could be a long way off, if ever, we have felt it important to help him have a better understanding of his own behaviors and challenges. …continue reading

Why I cannot buy you marbles…..

February 11, 2013 in Behavior, Seekers, SPD with 2 Comments

I would love to give you everything your heart desires.  Just today I noticed that you have been chewing on the sleeve of your school sweater.  Just last week I had to ask what you

SPD DIY: There’s No Day Like A Snow Day

January 9, 2013 in DIY, Seekers, Sensory Diet, Winter with 12 Comments

For much of the northern hemisphere, flipping the calendars over to the month of January puts us smack in the middle of winter — complete with ice, sleet, cold temperatures, and of course — snow.

I’ve Stopped Being Afraid Of My Kid in Public

July 1, 2012 in Anxiety, Humor, Inspiration, Seekers, SPD with 10 Comments

I have no pictures to post of us at the library. Because I was too busy wrangling and making sure my kid didn’t murder the other kids in the five and under room. Ok, murder is

An Important Lesson We Need To Teach Our Children

We recently had our son’s IEP meeting. We are, from what I can tell from other stories I hear, very rare in our experiences. Our IEP meetings have always been friendly and upbeat. You can

Screaming for Control

January 24, 2012 in Autism, Sensory Diet, SPD with 2 Comments

Every day my family must muddle through our conflicting sensory needs. Whether it is sensory overload, sensory avoidance or sensory seeking, at least one member of our family tends to be off-kilter at any given

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