We recently had our son’s IEP meeting. We are, from what I can tell from other stories I hear, very rare in our experiences. Our IEP meetings have always been friendly and upbeat. You can feel how much his teachers and therapists love him and only want to set him up for success. A story from his IEP got me to thinking. First… the story.
At our IEP meeting his teacher leaned over and said “OMG, I have to tell you this story about Dylan. Not only does he recognize his own sensory needs but can now spot them in the younger kids”. Dylan is in a self-contained classroom that runs Kindergarten through second grade. “Just the other day he said “Mrs. W. Pablo is driving me nuts! He needs my vest!” With that he went over to his compression vest, took it off the hook and put it on the younger boy who immediately settled down. I heard this story and was, as you can imagine, beaming with pride. Then I realized that it wasn’t something that just happened. It was years and years and years of work on my son’s part, with his OT, that brought him to this point. …continue reading
A week from today, I meet with a new pediatrician and we are going to discuss the paperwork and records I dropped off from school reports and his IEP’s as well as all the records from the hospital and his primary care physician.
I do not know what to expect, what she will tell me, but I have a feeling for once, she will just be able to sit down and listen.
She will listen as I ask, “ADHD and SPD?” “Both? “”One or the other?” “What about ASD testing again?” “Did the psychiatrist even test him for ASD in the first place because I don’t see any of it written down in the pages I have copies of…”.
Does it actually matter that Josef only fell asleep in the the big papasan chair/swing until he was almost a year and a half old? Or talk about all the times we had issues with him and his imaginary anxieties as a toddler? One winter after getting home from a dinner party, Josef refused to take off his shirt that had sesame street characters on it. We have no idea why, but we took it off of him and put on a sleeping shirt. He started to lose it and was in hysterics pointing to the closet door where his hamper was–where we just put the sesame street shirt. He got out of bed and started pounding the door. He looked desperate–not mad. There was a reason for why he just had to sleep with that one shirt on. So, after about 15 minutes, we, in our desperation, took out the hampered shirt and he wore it to bed. Battle for control or battle because of a sensory issue? He used to get mad when his sock seams did not align where they were supposed to. But these battles seemed normal, so we didn’t’ think anything of it. …continue reading